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Lucas’s Story

Welcome to the story of Lucas' battle against leukemia. He had a rare type called acute myelogenous leukemia, most commonly referred to as AML subtype M7.

He was diagnosed on June 10, 2010. Lucas fought extremely hard for more than five months. Jesus welcomed him into Heaven on Nov. 17, 2010. He was two years old. Thank you for all the kind thoughts and prayers.

Josh, Tiffany and Lucas

The weekend of June 5, Lucas started feeling under the weather. Tiffany took him to the doctor and got a prescription for amoxicillin. After a couple days on antibiotics, there was no change. So, she took him back to the doctor on June 10, and he ordered a complete blood count (a.k.a. CBC or blood work).

When the results came back, the lab recalled Lucas and Tiffany because they thought there was a mistake. After the same "abnormal" results showed up, the pediatrician called and told her to take Lucas to Children's Hospital. She rushed him over, and he had another blood test. I arrived at the hospital that night.

About two hours after I got there (around 10 p.m.), the hematologist/oncologist came in and told us that after examining the white blood cells, she's determined that he has leukemia. As you can imagine, a lot of tears flowed and it took us a while to recover. The doctor told us a lot of progress has been made and many types are curable. That night, we went to bed (more like took a 15 minute nap) by his side, feeling hopeful.

The following day, things took a turn for the worse when the doctor told us the bone marrow biopsy points toward AML, which is the rarer of the two types of childhood leukemia. It's tougher to treat, but is still treatable and cureable.

The day after that (so June 12), the doctors gave us a little more bad news. Lucas has a very rare type of AML: M7. There are seven types total. M7 is the second rarest, only because it is commonly found in Down syndrome children. (I know what you're thinking, no, the genticist does not think Lucas has Down syndrome. We're waiting for the genetic testing results, but there is no indication he has it.) To give you an idea of how rare it is, one doctor said St. Louis Children's Hospital typically sees an AML M7 once every other year.

After some more tears and near nervous breakdowns, the doctors told us they have treated and beat this cancer before. The typical treatment path involves about 6 months of chemotherapy, followed by a bone marrow transplant.

Thank you to all of the friends and family members who are praying for Lucas. We really appreciate it. While we trust the doctors' treatment advice, we know the only one person who can cure Lucas is the same one who created heaven and earth.

Throughout all of this, I keep coming back to a Bible verse I've heard my father repeat time again. It's Psalm 46:10 and simply states "Be still and know that I am God."

Latest Journal Update

Christmas Isn't the Same

Christmas will never be the same without Lucas. Sometimes I feel like the joy and spirit are gone. It's hard to get into the decorating and gift buying sometimes. But then I remember that Christmas is the celebration of Jesus' birth and arrival on earth and that makes me happy. Lucas gets to be with Jesus always. That is a good thing. It's just hard on me because I miss him so much.
Linus had a pretty good Christmas. He is the only one of us that didn't get that nasty 24 hour stomach virus going around. We are very grateful for that! He loved Santa and getting presents under the tree. He is a very happy and active two year old. Josh and I are both doing well and trying to enjoy Linus and this adorable stage of life. We are very aware that we missed out of this opportunity with Lucas so we are trying to take it in with Linus.
I hope everyone reading this enjoyed their Christmas and time with family and friends. As always, my family continued their tradition of collecting toys for SLCH in memory of Lucas and will be delivering a bunch of wonderful gifts to many kids there soon. I know you remember and think of Lucas often and I thank you for that. It means more to me than you will ever realize.

Lots of Love,