My Story

Logan Scott Heller was born on May 20, 2005. He came into this world a beautiful healthy blonde haired, blue-eyed baby boy. From the day he was born he always held his little hands together across his chest as if he were praying. We all thought it was precious. We had no idea that anything was wrong with our baby.

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Journal

Thursday, June 11, 2009 12:52 PM, CDT


We took Logan to Houston on Tuesday for his "urgent" MRI that was scheduled 2 months ago.  He did well for the most part.  He went out as soon as they gave him the sedation meds in his IV.  The PA from the nuerologist office called me yesterday to let us know the results.  Logan has developed more tubors in his brain.  He has one that is prominant and growing in size.  The good news is that these tubers are not causing any cranial pressure.  But, the growth of more tubers is probably what has caused the increase in siezures and the "drop" siezures Logan has been experiencing.  I will be going back to meet with the nuerologist in a couple of weeks to get more details.  This is a progressive disease, but I guess because Logan already had more tubers than they could count in his little brain, I wasn't anticipating that he was having new ones growing.  This is sad and frustrating news, but we are gonna keep on trying everything we can to make LoLo's life the best he can have.  He is doing great in therapy.  He is trying to use the sign for "more" when he wants more of something (toy, food, music, etc.)  So we will focus on that. please keep him in your prayers!

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If you would like to make a donation for Logan please mail to:

Logan Heller Medical Fund

PO Box 51

Nursery, Texas

77976

Anything is greatly appreciated :)

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HOSPITAL INFORMATION

Texas Children's Hospital Houston Texas
6621 Fannin St.
Houston, TX 77030

832-824-1000