Elizabeth Skree
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Welcome! I was diagnosed with pediatric gastroinestinal stromal tumor (GIST) cancer in June 03 and Carney's Triad, a very rare syndrome, in December 06. I use this site to keep my family and friends updated on my treatment and prognosis. You're invited to sign up for email updates as well as sign the guestbook. Thanks!
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  WEDNESDAY, SEPTEMBER 24, 2008 12:10 PM, EDT
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Paraganglioma tumor-free!

I got a call yesterday from the endocrinologist at the NIH, and he said my paraganglioma blood work came back as unremarkable!!! (which is a good thing, it means the markers they were testing for didn't show up!) So in short, I don't have any paraganglioma tumors, which is really really awesome! I just have to go back to the NIH in 6 months for a check up. Next up, in November I have a PET/CT scan and appointment with my oncologist. But in the meantime, it's smooth sailing.

Love,

Elizabeth
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EMAIL AUTHOR
elizabeth.skree@gmail.com
HOSPITAL INFORMATION
The George Washington University Medical Center
2150 Pennsylvania Ave NW
Washington, DC 20037
United States
202-741-2210