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  • SupportPlanner

    Written Jan 14, 2013 4:21pm by Liam Yore

    Liam here

    Not much to report. Liza is doing well on the meds. She has a lot of fatigue but is remaining fairly functional.

    The main reason for this post is that I've had a lot of people express interest in helping out the family in whatever way they can. We are very open to that, but it's a bit tricky figuring out a) what our needs are and b) how to coordinate.

    The good news is that we have got some time to figure this out. Our needs right now are minimal as Liza is feeling good and I am not working too much. However, over time I am sure that there will be more of a need, depending on how things go. We are very aware that we are running a marathon, not a sprint. Hopefully it will be a very *long* marathon! 

    What I have done is enable a function called "SupportPlanner." You can see the link in the menu bar above and also in the "My Story" section. Basically, we will put up events or tasks as we need them, and you can see and sign up for them. Unfortunately, I think you have to create a CaringBridge ID to use this feature. Right now the main items there are transporting kids to & from soccer or swimming, and some babysitting. However, February is looking much busier as we have a lot of stuff going on, a lot of medical tests, and I am working more. In the future, I can see meals, cleaning, and laundry being items that we might ask for, though for the moment we are OK on that front.

    One note on meals: from our previous go-around on the cancer ferris wheel we realized that people really seem to enjoy and value making our family dinner, and, frankly, we liked it a lot, too! However, all I ask is that you PLEASE check with me or Liza before coming by with a nice hot meal. Text me or email me at ltyore (at) mac dot com. It happened several times that a friend would drop by with a spontaneous hot meal when we already had dinner on the table. Awkward! 

    I will say that this is something of a challenge for us. Liza and I both have a mortal dread of imposing on people. We hate to ask for help and we hate the thought of not being self-sufficient. However, there are two compelling reasons that we are putting this out there. The first is the reality that at times, we will need help. I hate to admit or acknowledge it, but there it is. This is not going away, and we are going to be living with cancer for a long time. So from time to time as treatment progresses, there will be some rough patches, and we will need help. The second reason is that I know most of you reading this know and love Liza (and tolerate me). It is very valuable to our friends and community to be able to express love and support, and this is a great way that you can fill that need.

    Again, thanks to all for reading and for your support.
  • Written Dec 29, 2012 12:44pm by Liam Yore

    Liam here -- brief update

    Not a lot to report, really. We have had a nice christmas with family in town. Very busy and very loud. Liza's been on the oral meds for a little while now. She is doing quite well with them, it seems, at least as well as you can expect on chemo. The main thing is that she has been very tired, which may be as much from the anti-nausea meds as anything else. She has had some GI side effects (diarrhea being the most prominent) but no vomiting and that at least is welcome. We are hoping that we can stop the nausea meds, because they are sedating enough that Liza is pretty wides out and sleeping much of the day, and maybe that will reduce the fatigue factor.

    Beyond that, it's been a happy holiday for us, the kids got tons of legos (boys) and ponies (girls) and now are getting a little stir crazy so we are wracking our brains trying to get them out of the house. Hope your holidays were good too.

  • Written Dec 21, 2012 10:39pm by liza yore

    Liza here-

    Today was day one of chemo for me. I have one of the two drugs in hand and took my first dose of Xeloda today. My daily routine will now be to get up, take a Zofran, eat  breakfast, and then take 4 Xeloda pills. I will take another 3 Xeloda pills with dinner.  When I get my second chemo drug, I will take those pills before lunch on an empty stomach.  I think that is 5 pills.  I believe I am up to something like 18 pills a day when I add in my other meds.  

    I also received news about my latest echo today. My EF is at 45-50%, which is subjectively better according to my medical oncologist.  What is means is that it isn't better or isn't worse. I will take that as a win.  It does put me right on the boarder for being eligible for some drug trials should I need them.  I am hoping that I won't need them. 

    So much going on in my head. I will write more about my thoughts over the past month at a later time. I am just beginning to see some light in my world and want to take a little more time before I start writing again. Its hard to put into words everything that has gone through my head lately.  For now, I continue to live in the moment.  

    I appreciate your support and wish you all the best this holiday season. 

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