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My Story

Hi, I'm Lindsey Couri and I'm 27 years old.

In October of 2008 I was diagnosed with a brain tumor surrounding my carotid artery and optic nerve behind my left eye.

It's my second brain tumor, what are the odds of that?

We moved the daily entries of what is happening here to the journal section of this page. If you are looking for that, just click on journal.

The beginning of this goes all the way back to when I was four years old. I was diagnosed with a brainstem tumor in 1988, Since that time I have had nine total surgeries for that tumor as well as radiation therapy.

In 1997, we were told that what was left of the tumor was dead and we were free and clear.

In 1999, I lost my Mom (Terri) to a brain tumor. The doctors told us they had never seen a Mother/Daughter tumor combo. We keep surprising the doctors most of the time.

In October of 2008, I began having headaches and some vision problems. We did an MRI and were told that I have another tumor, in a new location.

The doctors believe this tumor was caused by the radiation therapy they gave me to get rid of the first tumor. They are seeing a lot of what they call "radiation induced tumors" in people who had radiation when they were young. As a matter of fact, they have for the most part, stopped using radiation in that situation now.

We began our search for doctors at the Mayo Clinic and despite their reputation and abilities, we ended up at Duke University. Doctor Takanori Fukushima and Doctor Allan Friedman did surgery on December 10th, 2008 and removed 98% of the Meningioma. We were VERY blessed to end up at Duke and would recommend them to anyone!

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Lindsey Couri posted a new journal entry.

We did another MRI on Monday and heard from Duke today. The docs say the tumors are stable and we're to stay the course. We get two months of normalcy before we do it all ... Read more

Lindsey Couri posted a new journal entry.

We did another MRI on Monday and heard from Duke today. The docs say the tumors are stable and we're to stay the course. We get two months of normalcy before we do it all ... Read more

Lindsey Couri posted a new journal entry.

Feeling VERY blessed tonight. Lindsey had an MRI yesterday and we sent it off to Duke. Dr. Desjardins emailed today and told us the scan is completely stable and ... Read more

Lindsey Couri posted a new journal entry, "MRI".

We realized we never updated here, sorry about that. The scan was sent to duke and they considered it stable so we're very blessed and grateful. We're also coming up on ... Read more

Lindsey Couri posted a new journal entry.

Sitting in the lobby with Lindsey waiting on a very important MRI to begin. First scan after she started Avastin. Read more

Lindsey Couri posted a new journal entry.

The 2nd treatment of Avastin is almost in the books. We're having it here in Tulsa from now on and the nurse was very efficient. She even got a brand new vein, that was ... Read more

Lindsey Couri posted a new journal entry.

Please pardon the delay in updating here, it was a busy couple of days in North Carolina. Lindsey’s first Avastin treatment on Monday went fine other than we were a ... Read more

Lindsey Couri posted a new journal entry.

We are here at Duke for Lindsey's doctor appt and first treatment of Avastin. She had her favorite dinner here, the Churrasco steak at Metro 8 steakhouse and then a shake ... Read more

Lindsey Couri posted a new journal entry.

Sorry for not updating earlier but we had some things to get straight first. We got news back from Duke and it was not what we wanted to hear. The tumor has begun to grow ... Read more

Lindsey Couri posted a new journal entry.

The initial MRI results are inconclusive, we're kind of getting used to that. The scan has been overnighted to Duke and we should have news from our docs there on Monday. ... Read more

Lindsey Couri posted a new journal entry, "MRI day Friday".

It's going to be a REALLY busy couple of weeks for us. Friday is MRI day again, we're looking forward to seeing how things are going. Then next week we see both the ... Read more

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