We are overwhelmingly thrilled to let you know that Lily’s x-ray and appointment went great yesterday and this update is being completed @ HOME!!!! We left Boston @ about 8:00 this morning and were home a few hours later.

Dr. Brown was very happy with how Lily has recovered. God willing, we will have a very healthy and relatively normal little girl until Lily will have the Fontan procedure performed in about 2 years.

What a ride it has been since first finding out about Lily’s condition last September to where we are at today. We could not have done it without all of your support. Words cannot express our gratitude and how fortunate we are to have you all as friends and family.

We will keep you posted on anything new with Lily’s condition but if everything goes as planned, the updates will be minimal if not non-existant. Lily is looking forward to meeting many of you as time has not permitted over the past couple months.

Have a fantastic Memorial Day weekend and a great summer. Thank you so much again for everything,

Matt & Gina

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