Woot! We did not get Lily's wheelchair yet (I expect it to take a couple months), but her sitting chair got approved too and we got it already! *happy dance*
They had accidentally ordered it, so as soon as it got approved, they brought it over for her.

I'm going to add a bunch of photos to the album of it and her in a few minutes.

Not much other news. Went back to the GI and she had lost a little more weight, but not a ton. He wanted to do a couple things I'm not totally comfy with and I believe may jeopardize her comfort/health, so I'm just going to ignore him for now and do what I think is right with her and consult her pedi if she keeps losing weight.