My Story

Lily is 8 years old & in 2nd grade and was diagnosed with Pre B Acute Lymphocytic Leukemia (ALL) on 12/1/2008 . Be sure to read updates in the journal & check the photos. Lily has started an organization to Find a cure for childhood cancer-www.lilysgarden.org

Journal

Thursday, July 2, 2009 9:51 PM, CDT


Good Evening!  Today I have started to see the effects of the chemo really effecting Lily.  She has been really tired.  In fact she has even admitted several times she was exhausted - fyi for Lily that means she is REALLY EXHAUSTED 

Also, her stomach is hurting quite a bit.  Some of it is nausea and sometimes it is just pain in her stomach.  

I'm not really sure which of the chemos is causing the problems, it is probably a combo of all of them.  I think last week she felt so much better because she had such a long break that she really regained some strength.

So, we are taking it easy.   We went to the pool for a little while today.   Lily couldn't get in since she has her port accessed.   However she did put her feet in. 

She is really cute in her bathing suit when her port is accessed.   Due to the bandaging she can't wear a regular tankini type bathing suit, so she wears this bathing suit that is a string bikini and Georgia Bulldogs since it is so tiny it doesn't cover the port.   Anyway, we got some looks at the pool.  Imagine bald girl, string bikini with a tube hanging out of her chest at the pool.   A little strange.   However Lily doesn't seemed bothered by it and hey she wants to go to the pool.  I will try and get a picture.

Well, that is about it.  Please pray Lily starts feeling a little better or at least not worse.  

Love,
Larisa
Love,

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Vanderbilt University
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