Hello all. So, I am back to work - Yuck. I don't mind working, I just don't like where I work. Oh well, I'm lucky to have a job and I know that. The worst part of going back was leaving Lily. I was home for 3 weeks and it was awesome getting to spend all of that time with her. The day before I went back I was holding her and telling her how much I was going to miss being home with her. Needless to say I started crying and she put her hands on my face and said "it's ok momma, i miss you too. don't be sad." and then she wiped away a tear and gave me a kiss. Yeah, that just made me cry harder! But, it was awful sweet.
She has been doing pretty good. She finally started getting better which I thought would never happen - that is until 3 days ago. Her fever came back, just over 100 degrees and hasn't gone away again. Tylenol brings it down, but it always comes back. Last night was a horrible night and she is sounding kind of wheezy again as well. I'm praying that we aren't heading down the sick road again. It's time to schedule her appointment with the cardioligist (I got a reminder in the mail) so I'm going to do that first thing Monday. We'll see when they can get us in. I want an echo done, I'm curious to see how her PH is doing.
Everything else is pretty good. The NICU that Lily stayed in after she was born and before we went to UofM for her heart surgery has asked me to be a part of their parent to parent program. I'm really excited. I have to take some training classes and then I will get to help other parents who are going through similar situations as what I went through. Plus I'll get to visit the babies in the NICU and I think it will be really rewarding.
Well, I'm going to give Lily a nebulizer treatment and then Alan and I are going to the movies this afternoon. We're going to see "I love you Man". It looks really funny. Prayers to all who need them (especially sweet Eithene and her mommy Jessica) and hugs to all.
Candice