OK, so it's been a while since I've updated. I hope no one has been worrying too much. Everything has been going pretty much the same. I have just been extremely busy and going crazy most ALL of the time trying to juggle kids in sports and doctor appointments and work, etc. etc.... So, I apologize that it has taken me this long to let you all know that we are all OK. :)
Alan is the same. He is still in pain most of the time and is still having a hard time dealing with it. He goes to the doctor next week to see if (once again) he can try some different treatments or different drugs. You'd think methadone and neurontin would be enough - but not doing the trick for him.
Lily has been off and on sick pretty much since winter. We are pretty used to it now and don't call the doc every time. The last time I was sure that something was wrong (which was just a couple weeks ago) her chest x-ray and bloodwork all came back fine. Although, I sometimes question the radiologist at Fremont. He's the one who missed Alan's tumor and the one that called Lily's pneumonia bronchitis and she ended up in the hospital. But, with the blood work being ok, I felt ok with it. We just up her steroids when she starts having difficulties and add tylenol when she starts running a fever.
Next week is the March for Babies for the March of Dimes. I'm really excited. With us being the Ambassador family for our county this year, we get to cut the ribbon and I will share Lily's story with all of the walkers. It will be really good. We are still taking donations online if anyone would like to donate. The link is on the welcome page. We are taking them online until next Wednesday night.
I want to say to all our caringbridge and carepage friends out there - I have been checking in on you, thinking of and praying for you all. I'm sorry that I haven't posted anything to your sites lately. I'm hoping that soon things will calm down and I'll have a little more "spare" time on my hands.
At the end of this month Lily gets to meet a new doctor. She will finally meet with a gastroentologist. Hopefully we can deal with her bowel issues and possible reflux. Oh, and we also discovered through one of the PT's that her left leg is shorter than her right. We'll have to see how that develops as she gets older. Hopefully if it gets to be too much of a difference it will just be a matter of putting a lift in her shoe and not surgery. But, it's just something we'll have to watch as she grows.
Well, thank you to everyone who has continued to check in - even when there wasn't anything to read. :) And, I am even going to put a couple new pics out there. Wow right? Lots of hugs and love to all!
Candice
