Happy Independance Day!
A clear memory from last year is crowiding in the play room up on the HOT unit with some other families and 50 IV poles and watching the fireworks out the window.  I wanted so bad to take Lieym outside to watch them, but of course could not.  I remember  Tim coming to get us, the ever vigilant daddy to go to bed and I started crying because I didn't know if Lieym would ever have the chanve to see fireworks again.  Well!!!  He does, and I have a bunch of sparklers  and glow sticks for some fun.  Lucas is turning 2 and having a birthday get together that we are looking forward to (Happy Birthday!!!!!).  Just so very thankful to be where we are.  It hurts to think about last year still- but I am so very very thankful each and every day to be where we are now.  We have so many friends that are not doing as well as Lieym that we are praying for every day.  When Lieym was diagnosed it became our way of life, and now just a few months after it is already a fading memory.  He is so full of life and love.  I can not even imagine life without him- but am trying to do the one day at a time thing and be at peace.
Be safe this 4th!  No drinking too much and falling into the fireworks!