Liam Larrow
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Liam has HURLER'S SYNDROME / MPS1. For more information on this diagnosis, you can visit http://www.med.umn.edu/bmt/disease/metabolic/hurlers.html.

He will need a bone marrow transplant soon; please consider joining the National Marrow Donor Program! For more information go to http://www.marrow.org/.

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  WEDNESDAY, JULY 16, 2008 07:38 PM, CDT
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What a miserable day. To do the GFR they had to start an IV in Liam. They tried, and failed, at LEAST 8 times. It was horrible. Then they drugged him so he'd be more relaxed and tried a couple more times. The drug also has a lucky side effect of causing slight amnesia. God, I hope he forgets that. They tired for so long we had to reschedule the appointment with the broviac surgeon for another day. The tentative plan is to wait until the broviac is placed and then use that to administer the stuff for the GFR. But Liam was such a little trooper. He was sedated for the CT scan and by the time he woke up he was back to his smiley, chatty, self.

On a good note, the CT scans were completely normal.

He really has a handle on the crawling thing. And he sits up on his knees a lot. He just kicked out one foot, like he was thinking of standing up!!

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EMAIL AUTHOR
LiamLarrow@hotmail.com

HOSPITAL INFORMATION
All Children's Hospital
801 6th Street South
Saint Petersburg, FL 33701
United States
(800) 456-4543