Lexi's Journal about Deep Brain Stimulation for Kernicterus
(background info is at the link below)
Lexi has a neurological condition called kernicterus as a result of very high bilirubin (jaundice) in the days and weeks after her birth almost 7 years ago. She is extremely smart but can't yet sit up, walk, talk, or hold anything in her hands unaided. We are pursuing deep brain stimulation (DBS) at the Medical College of Virginia in Richmond. If she turns out to be a candidate for the operation, Lexi will be the first child with kernicterus to have this procedure. Since it is experimental for her condition we have no idea what to expect from the surgery including what benefits we may see. We are keeping this diary to keep friends, family, and other families with children with this condition informed about Lexi and the trials and tribulations surrounding DBS for children with neurological conditions.