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Levi’s Story

This is the story of Levi David Ewing, our little miracle - the Bigga Boy.  On Monday, July 23rd what we thought was a simple case of strep throat was diagnosed as a brain tumor.  A 1.5 inch tumor located right in the middle of his brain plugging up hole where brain fluid normally drains.  This created excess fluid build up making Levi extremely sleepy and sick to his stomach.  From Children's Mercy Hospital in Kansas City to St. Jude's Childrens Hospital in Memphis Tennessee the epic of how God is working in and through this little life will be inspiring to tell. We will take all the prayers we can get.  Thank you for helping us to love on our sweet boy.

Update for July 30th, Levi had a rough day yesterday being very sleepy and not opening his eyes much.  At some points he was awake but unable to open his eyes so we stayed by him almost the entire day standing next to his bed.  I think he threw up 5 times after nursing so they have decided to stop nursing for now and just give him fluides via IV.  Very painful as a father to look at him, knowing he was awake - playing with my face and hands but not opening his eyes.  He is getting lots of love as God has placed very special people all around us to care for him.  Our nurses this whole week, both our day and night nurse follow Jesus.  An amazing sign from God that He is in this even when we feel so alone.  To be able to pray with the ones who are taking care of Levi has been a huge encouragement.  He has also placed other families around us here in the ICU that are going through very difficult times with their babies.  This has given us an opportunity to pray for them and encourage them - trying to be strong when they are weak and vice versa.  One family was from Olive Branch Mississippi and they attend The Great Commission Church there.  Their little girl Micah is having rods put in her back for spinal curvature.

They are draining fluid off of Levi's brain this morning as he prepares for an MRI which will give doctors the info they need for surgery tomorrow. (Aug 1st) They have decided to go in and try to get another biopsy that they can use for labs and send off to determine treatment. The main problem with this tumor is that it is very "vascular" - meaning it has a lot of veins running to it. When they cut it, it will bleed ALOT. The danger of taking it out completely due to this fact outweighs everthing else. The plan is to determine the type of tumor and start the appropriate treatment (chemo, radiation).  More to come after we get results from the MRI. 

Levi is awake this morning as his binky just fell out and he reached out, picked it up and put it back in his mouth all by himself!  Good news to start the day.

Latest Journal Update

Next Chapters

 I've struggled with my thoughts on how to write this post.  It's been so long since I've updated everyone.  Let's start with the Hope Train Delivery.  You donated over 343 toys to the 1st Annual Levi's Hope Train toy drive for the kids at Children's Mercy Hospital!!  We have more toys coming in that will make their way down the CMH in the following weeks.

It was good to see this thing through to completion and to bless the socks off the volunteer coordinator when we showed up!  We got to do it on Levi's birthday which was awesome and was a bright spot on a difficult day.  From there we went to lunch at Fritz's in Crown Center which is a fun, kid-centered train theme restaurant.   We took in a movie and rounded out the night with cookie cake and a lantern release which is always an adventure.  If you've done one you know what I'm talking about.  We look forward to these events next year and hopefully with so many toys we need to do a double delivery - one in the spring and the other on his birthday.

Now for the hard stuff.  The Hope Train is leaving the station....both literally and figuratively.   The next chapter of our life will be one filled with newness and adventure.  I have accepted a job which will take Team Ewing to the little town of Fort Wayne, Indiana.  It's in the Northeast corner of Indiana about an hour and a half from Indianapolis.  

Honestly this is a daunting task for our family - we've all been born and raised in Liberty, Missouri.  Our whole life has been wrapped up in this community with all the people and places that make it home.  Life is made up of relationships and the most difficult part will be leaving those physically and relocating to a place where we have one.  I will be working for a previous manager who has hired me to take the Local Sales Manager position with the ABC affiliate in Fort Wayne.

Emotions range from excited to sad to being overwhelmed by the amount of things that need to happen in a short period of time.  We put our house on the market this past Monday (if you want to buy a house please let me know!) and we need to be 10 hours away in Fort Wayne on September 12th.  Please pray for us that all the details will fall into place and this huge transition will take place as smoothly as possible.

So why in the world accept a position that moves our family almost 600 miles away from home?  Good question and one that Alicia and I had to work through before making this decision.  It's been hard to live in the house where we have so many memories of Levi.  It's hard to live in a place where almost everywhere we go we think, "I remember when we came here with Levi."   I think a fresh start for our family will be good and healthy.  New places, new memories.

It's hard to see the big picture most of the time.  So many questions often keep us from walking through doors that stand open in front of us.  Some of them close.  God opened this door for our family and has confirmed to us in multiple ways that this is place He is leading us.  But that doesn't mean that it will be easy.

The next few weeks and months will be "crazy" to say the least.  Sell our house, pack up everything we own, get it all there in one piece.  Then we need to find a church community and get plugged in. (those relationships I was talking about that are so important).  Now you know what to pray for!
  There will be a second annual Hope Train drive - possibly in two states affecting kids in two different hospitals.  That's a cool thought.

A good friend of mine put their move in perspective this way.  Think of it as another kind of mission field.  This will be a whole new group of people who don't know Levi's story and the things that God has done in our lives.  Maybe there are people there who need people like us because we share similar life experiences.  I guess we'll find out.

More updates on the way - stay tuned and I'll do my best to fill in the blanks as we find them ourselves.  

Thanks to you all,

Team Ewing

11 people hearted this



Melanie Thomson
By Melanie Thomson
Prayers for you and your family during this transition. My brother and nephew live in Fort Wayne: my brother is stationed there with the Navy. My nephew is almost 11 and goes to school there...maybe just maybe he will get to meet the Ewing fam thru school. They used to live in Liberty about 5 years ago. Best wishes!
R Denise Fair
By R Denise Fair
Bitter sweet to read and think about all to come, but know that Team Ewing is forever in our hearts and though you are moving we expect to see you when you come back to visit and maybe one day we can make the trip to see you!! Praying God continues to cover all of you in this move and opens doors for new awesome friendships for each one of you! Love you all!
Kasey Stinnett
By Kasey Stinnett
Team Ewing,
I do not comment much on your post as I honestly do not know the right words to say but, I could not finish reading this with tears in my eyes and my heart for you all. ( some happy some sad) and not comment after. I wish you all the best wish and safe travels in this new journey of life that you taking. What a huge change and a great opportunity you all have to meet some new people and move on to a new place to share sweet Levi's story. I believe in my heart that he will be with you all the way leading you right besides our mighty GOD! I am overwhelmed at the faith this family has and the strong wills to carry on. I tip my hat to you all. I unfortunately never had the chance to meet your sweet angel face to face but, I have heard many stories and, read all of your blogs and this amazing lil' man has touched my heart in a way that I can not explain. I send you all lots of hugs and prayers and look forward to reading more updates. Go 'em Team Ewing! Your only limited to where you choose to stop. God speed !!! <3
nancy green
By Nancy Green
Bittersweet. Happy for you guys. Fresh starts may seem a little scary from this side, but as someone who has had a few, I will encourage you that they are worth it. In a little while you will have 2 "homes". Your hearts will be expanded with your territories. Be strong and courageous. God will be your pillar of smoke in the day and fire by night.
Debi Johnson
By Debi Johnson
All kinds of thoughts and emotions going through my mind as I read this!!! However, I know what a great witness for Christ Team Ewing has been personally in my life and may I say many others lives as well. I know God has such awesome plans for His team in Ft Wayne. KC's great pride and God's great glory will now be on the move to bless others 😊
May the road be smooth and may Team Ewing return for many visits.
God's peace be with you always!
Debbie Ewing
what an exciting adventure for Team Ewing. I had seen the "house for sale" post and wondered what you all were up to. Obviously we are sad to see you all move so far away but pray for nothing but positive blessings for each and every one of you. Keep us posted and keep sharing those pictures - I love seeing your family grow :) Much love, Aunt Debbie
1 person hearted this
Caleb Pahl
By Caleb Pahl
Thanks for the update! Blessings to you as you make this big transition.