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My Story

Lee injured his back on July 20, 2012 and has been working with a Chiropractor, Family Dr., and an Occupational Dr.  We had an MRI on July 31 which showed a bulging disc in L5.  We went back for a follow up appointment Aug 3rd and were told to go directly to an ER.  Lee was pale, had numbness in his feet and into his face and left hand.  The ER did a blood tests and more scans.  The blood draw revealed his platlets were at 14,000 and a normal counts are in the 150,000 range.  We have been admitted to the Oncology unit and have begun the treatments for accute Leukemia. 

February 20, 2013 Lee had a successful unrelated 9/10 match at University of Washington.  With less than 10% gvhd we went home with nothing more than new marrow and a small viral skin rash.  By May 31, 2013 we were home and in remission. 

September 19, 2013 we found leukemia had returned.  Lee's blood counts became low for two weeks and were our first sign of bad news.  7 months of peace and now we are back in the fight of our lives, starting at square one. 

January 2014 cancer returned for the third and final time.  We returned home for our final family moments and Lee went to rest in Heaven January 28, 2014. 



(written at the onset of cancer) Lee turned 36 in June 2012.  We have been married 3 years and have known each other 4.  He went to school at Rogers High School and served in the Army.  He served overseas in Kuwait and El Salvador before 9/11.  After serving in the military he came home to his family and started working for the City of Spokane.  He has been with the City for 10 plus years and is a Crew Leader of a Wastewater Construction Team.  He has a lot of pride in his work and of his crew.  This year he tested first on the District Supervisor Test and the Inspector Test--he was beyond elated. 

Lee enjoys raquet ball and the occassional beer and wings with his buddies, fishing, mountain biking, hunting but his main time is with his baby girl Leah.  They do everything together.  Lee is the type of Father who is apart of each task..hair, clothes, bath time, bed time, reading, school, and Leah loves to play with him.  "Chase me Dada" is one of her favorite sayings.  We love to take trips to the park, camp and fish together.  Froyo is also a favorite family night out...(frozen yogurt).   Last year we went to Yellowstone and this year we camped at Porqupine Bay. 

Lee has 3 brothers, Perry, Robbie, and Chad.  They are the closest set of brothers I have ever seen.  They kid and slap and get together on every holiday and birthday.  Lee also has three sisters, Tiffany, Julie & Jenny.  These three ladies are also really close with Lee and he is very soft towards his sisters.  We have attended Church at Lifecenter since we were married and this is where Leah was Dedicated.  Lee is a gentle soul and the type of person whom everyone likes to be around.  He enjoys gardening and taking care of the yard.  His dog is a little 11 pound yorkie named Bella, and they are quite the pair.  

I have to say, Lee has prepared our family well for alot of things-structure, finances, and routines.  We have health insurance, a good home, we don't live outside our means and thanks to Lee have food stocked and minimal bills.  He is a financial savy person and has always guided us to be smart and prepared.  I think he worries about medical bills, but he is getting the care he needs and that is the number one priority.   Lastly I will say, ...Lee is my best friend in the entire world.  He has been an incredible husband from day one.  I love that he prays with me & Leah...bedtime, dinner time, anytime. 

He prepared us all for this journey. 

Feed

Rebekah Johnson posted a new journal entry, "Just Words".

I think when I came out of my biological mother’s womb, Iuttered the words, “I do it myself”. It’s much along the same lines with Miss Leah Johnson.   As I ... Read more

Rebekah Johnson added a new photo.

Rebekah Johnson posted a new journal entry, "Firsts".

The occasions, holidays, and firsts are like swift but firm throat punches. Memorial Day. Fathers Day. Lee's birthday in two days. How excited we were last June 26th for ... Read more

Rebekah Johnson added a new photo.

Rebekah Johnson posted a new journal entry, "Then and Now".

May 31, 2013. Lee and I were on day 100 of transplant and told to go home. With the apartment packed and one full rig we stopped by clinic to make our last appointments. ... Read more

Rebekah Johnson posted a new journal entry, "Leah's New School".

I haven't detailed the entire uncomfortable situation with Leah's teacher, but I've definitely hinted about it in our blog. Last week the situation came to a boiling point ... Read more

Rebekah Johnson added a new photo.

Rebekah Johnson posted a new journal entry, "Day 100".

Officially done counting.  You know when you see a cute kid in public and you ask the parents, "How old is your child?" and they answer "36 months".....and in your head ... Read more

Rebekah Johnson posted a new journal entry, "Rob's Speech".

Robbie is Lee's younger middle brother.  They were in the 'middle' together.  These two.  Images of them slapping each others legs comes to mind when I think of them.  ... Read more

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