Mason Lee's Journal
Mason day I've-lost-count update
Written Feb 27, 2014 1:26pm by Maly LeeMason gets to go home tomorrow! It'll be exactly two weeks since we first brought him in to the ER for respiratory issues. It feels so weird to finally hear that they're getting discharge papers and prescriptions ready after so many days and nights of "not yet". So excited!
Mason day 11 update
Written Feb 26, 2014 1:49am by Maly LeeWe're one step closer to going home! Mason's white blood cell count is up to 3.1 (above 4.5 is normal) and his ANC is 1530!!! Over 1200 of these infection fighters in the white cells means no neutropenia! The treatment has worked! Now, he still has pulmonary issues that aren't fully resolved yet and that's what's keeping us from going home, say, tomorrow. He continues to wheeze, breathe fast, need oxygen, and now an area in his left lung is not moving air very well. The plan is to stop one of the nebs, which may be making his secretions too thick to be coughed out (and causing the low air movement in his left lung) and keep him another few days until the doctors are confident that he is on the mend. Then they'll discharge us with the rest of his pulmonary treatments to do at home. He's looking good, everyone
Written Feb 20, 2014 9:56pm by Maly LeeEddie and I traded places last night because I got very feverish and weak. I went home and he to the hospital to be with Mason so I could rest without machines beeping and nurses/respiratory therapists talking like it's not two in the morning.
Anyway, Eddie says Mason did great today, but not ideal. Blood work shows that Mason's white blood cells have come up just a teeny tiny bit. His doctor says it's not enough for them to believe he's on the mend, but hey, at least it's not going down even more! Mason slept through the night fever free, but became feverish toward the evening today so that's a bummer. The RSV and flu cultures for the past couple of days have been coming back negative, but he's still having fevers so the doctors are testing for everything they can think of. So far, it's all coming back negative, which is good, but puzzling. They're leaning on that there's a new strain of RSV because many tests have been coming back with false negatives. So, now we'll see how he does through the night. With the fevers still occurring and his white cells not cooperating to the satisfaction of his doctors, Mason will be kept for yet another weekend and the bone marrow transplant hospital is now alerted for his possible transfer to them. His doctors don't feel comfortable continuing to treat him if the med to stimulate white blood cell growth doesn't work. It's good they're thinking ahead, but scary. The look on the pediatrician's face last night was disappointing. I just can't believe that my baby is as sick as they say...