Mason had a bit of a hard time last night so I spent the night camped out next to his bed. His oxygen saturation was fine and his heart rate just a bit elevated, but not by a
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Today is Jiena's 8th birthday! In all honesty, when she and Mason were diagnosed three years ago (has it really been that long already???), I really could not see today happen
We have a big day tomorrow! First, Jiena has a follow-up appointment with her Endocrinologist. She'll have more blood work done and hopefully her thyroid medication is doing i
Mason has a swallow study tomorrow morning and then we will be heading to a meeting with a city council member about Be The Match! I'm so nervous for both and not looking forw
We love that the ALS Ice Bucket challenge has raised over $50 million dollars for a great cause. We wish so much that we could do something like that for the Fanconi Anemia Re
We are getting ready to go on a two-day vacation and we're all super excited! I'm also really nervous and hoping things go smoothly for us. Until we have pictures from the tri