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We found out on my 40th birthday that I was pregnant. What a birthday gift!!! At our 20 week ultrasound they discovered that it was a boy and apparently he wasn’t shy about showing that off!!! J Unfortunately, they also discovered that our sweet boy has a congenital diaphragmatic hernia (CDH). This is a hole in his diaphragm that has allowed his stomach and intestines to move up into his chest cavity and push his heart over to the right side of his chest (his heart should be on the left). The organs being displaced have also inhibited the growth of his lungs. Four weeks later at the next ultrasound, they discovered that the baby also has a heart defect. This is unrelated to the hernia. He has a hole in his heart, the pulmonary valve is narrowed, and his left ventricle is smaller than it should be. Both the hernia and heart defects are surgically repairable with fairly good prognoses individually. However since he has both issues, it decreases his chances of survival. They are giving our son 40-50% chance of living after he is born. He will be delivered by C-section on November 14th at Vanderbilt Children’s hospital in Nashville. This is because they have a machine called ECMO which is a heart and lung bypass machine. As soon as the baby is born, he will be evaluated in regard to the severity of his heart problem and whether his left ventricle will be able to both sustain his life and withstand the surgery needed. If his heart is strong enough, they will do surgery to repair the hernia a few days after he is born. He will most likely be in the NICU at Vanderbilt for 2 to 3 months following his birth. <?xml:namespace prefix = o ns = "urn:schemas-microsoft-com:office:office" />
They keep saying that this little guy had a “long road” ahead of him. Even though the pregnancy is coming to an end, it feels like not only are we not out of the woods but that we are just now entering into a very dark forest. There have already been some very dark times of unknowns and uncertainties, but there is no denying that God has been with us in mighty ways. We have been able to feel His presence, experience His provision, and have seen His power in mighty ways. He has blessed us with His body of believers who have loved us, ministered to us, and prayed for us. God is so good all the time!!! Thank you for being a part of this journey with us. I’m reminded of Jesus’ words in regard to the man who was blind from birth, “This happened so that the work of God might be displayed in his life.” (John 9:3) Already God has used this sweet little one to display the work of His hands. It has been an honor to already have an opportunity to be a part of what God is doing, to already be able to love this little guy, and to eagerly anticipate what God will do next!!