Leah Rule's Journal
Written Apr 1, 2011 9:42pm
Written Apr 1, 2011 9:33amHi Everyone. At first I didn't want to do this caringbridge thing. I was afraid everyone would feel sorry for me and it would be depressing. After the reality of the situation started settling in, I realized that there are going to be a lot of people who want know what's going on. I'm truly blessed to have a lot of friends and family.
Thank you so much for the positivity. I believe in the power of the mind and my fear of pity in using this caringbridge site is gone. I know you are all on my positive train......rolling down the track to a happy outcome.
I have been keeping a journal since this all began. There's too much to re-tell here and I tend to run out of energy pretty fast. My pain drugs and anti-anxiety medicine do that. Fair trade off, I say, but I wanted to just give you a quick synopsis of the prognosis.
After the aforementioned stomach pains and constipation and a couple visits to urgent care to be put on Miralax and Metimucil, I was finally able to see my family doctor who agreed that the pain was not right. A CT Scan was done and because my Dr. was not able to be there, the ER doctor gave me the results. Poor guy had never laid eyes on me before and here he is telling me I have ovarian cancer that had metastasized into the surrounding areas. He had a hard time looking me in the eye. We did not ask him a lot of questions. I suppose we were in shock and didn't know quite what to ask. Before we left we knew I'd be having surgery and chemo, probably at the Mayo.
My appointment at Luther Midelfort on Thursday with a urologist and an oncologist went much better. We saw the urologist because the mass is pushing on the tube to my right kidney and causing it to not properly function. It doesn't hurt and isn't a huge emergency, but somewhere along the way in the next week they will put a stent in that tube. The urologist offered to show us the CT Scan. I was so (SO) scared, but i had to to face it. What it looks like is a big bag around my whole female region. It's large and all the pressure is what is causing me all my pain. Let me skip forward to the oncologist's explanation of this.....
Is it cancer? He can't say for 100% sure but it would be likely.
How do we get rid of it? There are 2 choices. Shrink it down, have surgery to put in the kidney stent, and after the mass is smaller surgically remove it and follow up with chemo/radiation if it's malignant. Otherwise, surgically remove it, put in the kidney stent during the same surgery and follow up with chemo/radiation if it's cancer.
The doctors both seemed to think the second option is most likely but this won't be decided until Tuesday.
This is a long journal. Thanks for reading all of it and thanks again for all your positive thoughts. I am so thankful for my friends and family and want to especially thank my Mom and Dad who have taken me to the doctor(s) and will help get me to the Mayo and for all their incredible support from the day I was born. Also- This will come as no surprise to any of you, but Rob has been at my side, getting my meds, making food (forcing me to eat some of it!) cleaning the house, getting me magazines and movies and taking care of me. What a lucky lady I am. I tease him that I'll try not to take advantage of him during all of this. He says I should go for it.
Lastly,the dogs are wondering why we're not walking, but are laying around with the cats keeping an eye on me.
I think that's all I have to say for now. My love to all of you.
Written Mar 31, 2011 6:06pmLeah has a very positive attitude and believes that she will be healed. She THANKS YOU for your thoughts, cares and concerns.
Thank you for your support.
Much love from Rob/Leah.