My Story

Thank you so much for visiting my page!!

Diagnosed Feb 14 2011. Surgeries March, April & May 2011.  Started T/C/H chemo July 20, 2011.Chemo stopped due to heart failure September, 2011 Restarted Chemo Oct 12th 2011 Started 6 months of Herceptin Infusion Jan 2012 Finished chemo in July 2012  Diagnosed with Heart Failure 60%   March 2013 Port removal surgery. Heart Failure Progresed to 65%  Need Defibulator implanted when strong enough.

 



I was diagnosed with invasive breast cancer on February 14, 2011.  I have been struggling for the last 2-3 years with Rheumatoid Arthritis and depression.  

  I was initially told in Feb that it was a very very small cancer, about the size of a pencil eraser and that lumpctomy and sentanal lymph node biopsy was the way to go.  I had that surgery in March and was told immediately after that everything was fine and that my lymph was clear, but 2 days later was told that the margins werent clear and that there was cancer in the sent node. 

I was told another lumpctomy would take care of it, there was a delay scheduling that and after I finally got that one in April there were 8 more areas of cancer.  Although I was told I could have another lumpctomy I  decided to have a double mastectomy with reconstruction on May 17 at Baylor Dallas.  This was followed by chemo at the Sammons Cancer Center.   I planned to have TRAM Flap reconstruction by Dr Jason Potter at Baylor Dallas.  I am taking Tamoxafin for 5 years. 

Dr Jeffrey Schussler at Heart Place Dallas says my heart failure has now progressed to severe and there is no hope for reversal or getting better.  He says I could die any day and I will have to learn to live with it.

Thank you so much for your prayers and moral support during this difficult time most especially for my parents and children. 

Feed

Laurie Jones posted a new journal entry.

Well.... not much left to say so I wont be updating anymore unless they plan a surgery or something.     Thank you so much to all who were so supportive during my ... Read more

Laurie Jones posted a new journal entry, "Broken Hearted".

I am having a really hard time with the hopelessness of the situation and so many other things.At least when I had cancer I had hope, but with the heart failure there is ... Read more

Laurie Jones posted a new journal entry, "Broken Hearted".

I am having a really hard time with the hopelessness of the situation and so many other things.At least when I had cancer I had hope, but with the heart failure there is ... Read more

Laurie Jones posted a new journal entry, "New Year".

So glad for the New Year and that we are still here.  So much to be grateful for.   Sarah won first place at her first ice skating competition this weekend!!  SHe is so ... Read more

Laurie Jones posted a new journal entry, "New Year".

So glad for the New Year and that we are still here.  So much to be grateful for.   Sarah won first place at her first ice skating competition this weekend!!  SHe is so ... Read more

Laurie Jones posted a new journal entry, "Understanding".

Unfortunately I am here to write some entries or an entry to help you understand what is going to happen and why.  I have tried my hardest to go on but things arent ... Read more

Laurie Jones posted a new journal entry, "Understanding".

Unfortunately I am here to write some entries or an entry to help you understand what is going to happen and why.  I have tried my hardest to go on but things arent ... Read more

Laurie Jones posted a new journal entry, "The loss of a daughter".

Camp Kesem was fantastic for the kids and we are allso grateful!!  They went back to school today and I will miss them so so much.   deleted due to upsetting personal ... Read more

Show more recent activity