Our last journal was drearytown. It's probably not fair to update only sparingly and then do so with a large dose of Debbie Downer. Thank you for your support and sitting with us in that dreary pile of poo. It was gross. But it was pointed out to us that flowers can grow out of poop. And maybe apple trees.
We have decided to get back to Hochstetler-ing. We have decided to get going, shake off the poo (gently so it doesn't splatter anyone else), and move forward.
Now it may not come as a huge shock to any of you that Momma Hochstetler does not do well with injustice. In fact, treating people unjustly ticks her right off. And there's that saying about the apple and the tree. And Momma H has a lot of apples. So when said injustice happens to Landon... Well... we're talking 22 Hochstetler rage apples.
*We sincerely hope that image does not ruin bobbing for apples for you this Halloween season.*
As our last update noted, the Carrick Brain Center was something we prayed over for many months before deciding to take a leap of faith into HoTlanta and see what pile of healing we might land in. While the treatments we got while in HoTlanta were hopeful, the follow up we were promised has been nonexistent despite Momma H's constant phone calls, emails, and letters. A StUpID amount of time and energy went into trying to get what we paid for and were promised. It is time consuming and exhausting to get Landon into Dairy Queen for a blizzard; so you can imagine how frustrating it was to allocate time to being on hold, leaving endless voicemails, hand writing letters (Yes, Hand-writing. Momma H demands justice 1945-style. Boom.), sending emails, and then hearing nothing. Just crickets. Horrible cricket silence that drives a person coo-coo-banana-crackers. And all this doesn't even involve ice cream. Not even a simple butterscotch dilly bar.
Then. FinALLLLLLLLLy. We get a response. In the form of a contract in legal mumbo-jumbo. Jigga wHA??
Last time I checked, legal mumbo-jumbo is really no good at healing traumatic brain injury. Which is all we are interested in.
This contract offered our family a certain amount of money if we would politely keep our mouths shut about our treatment at Carrick. Yep. Hush money, folks. And not even enough hush money to cover the cost of going to Atlanta. Much less the emotional toll of having a hopeful option turn into a bureaucratic nightmare.
So we sat with this contract. Hating it. Shutting up is not a Hochstetler skill. But maybe getting even some money back to put into other treatment options was our best choice?
Then we thought about all of you. This beautiful, compassionate community of people who have selflessly fought alongside our family for over five years. This community who gave us much of the funds in order to go to Carrick and pursue further healing for Landon. We knew many of you were eager to hear how it went in HoTlanta and were confused by our silence. We did not like silently sitting in that pile of poop one speckle and frankly we had some concerns about our ability to be silent forever about Carrick.
So we told them we would not be silenced. We are not interested in pursuing a law suit. Not even maybe. We are not angry at any of the doctors we worked with at Carrick. We are very frustrated that Landon's care was interrupted by a short-sighted corporate restructuring which left us with nothing. We responded to the contract from our heart, telling them that their handling of the situation felt nothing less than cruel to a family who has been dealt enough cruelty. Landon deserves better. This community deserves better. And No. We will not shut up about it.
Apparently, that is not a normal response that Darla and Ken Beam (Corporate leaders of Carrick) get. In response to our letter, we got only a certified letter in the mail from their lawyer, withdrawing the previous offer, and expressing regret that they cannot agree to meet the terms requested.
So we have decided it is time to let Landon's supporters in on the whole story.
When we make decisions for Landon's treatments we acknowledge that you all are a part of that and take great responsibility in handling the gracious funds we are given with respect.
So we think you ought to have a say. If you feel so compelled, we are just gonna leave this information riiiiiiiiight here and you can let Darla and Ken Beam know what you think about them keeping your money.
Office: 214- 771- 8885
Cell: 817- 807- 1407
Toll Free: 855- 444- 2724
After many months of debating, praying and yelling about how to move forward, our family has found some peace with this decision. To keep making our voices heard, to not take weird hush money for silence, to be truth-tellers even when the story is weird.
As Momma H. says, "Our God will supply in ways we know not. But oh, how my soul hates injustice!"
Now go put on a flamingo costume and bob for an apple.
We love you.