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Lance’s Story

Welcome to Lance's CaringBridge site. It has been created to keep friends and family updated on Lance's progress as he begins his quest to become seizure free.

Lance was diagnosed with severe hemophilia in 1990 at five days old after experiencing a severe intercranial bleed. Lance recovered faster than expected and proceeded to grow into an amazing young man (not that as his parents we are biased!).

He has been presented with many challenges since and has always risen to the occasion, carrying himself with grace while maintaining a friendly, outgoing personality.

In 2001, Lance began experiencing brief episodes of disorientation that were later diagnosed as petit mal seizures. Over the past several years, the seizures have increased in frequency and severity. Lance has tried many different medications however he has been unable to keep his seizures under control.

Thanks to the talented doctors at the Cleveland Clinic and the dedication of our amazing hematologist, Dr. Amy Shapiro and her staff at the Indiana Hemophilia & Thrombosis Center, Lance is being given the chance to overcome the seizures that have made acheiving some of his goals more difficult.

Be sure to read the latest in Lance's journal, view the photo gallery, and drop us a line in the guestbook. We appreciate the kindness and support of our many friends and families as we begin this process.

Latest Journal Update


I can't believe it - graduation is THIS Saturday!!! We are so excited. Lance has taken all of the necessary steps to enroll at Ivy Tech for the fall (we thought about enrolling for summer classes but decided he had earned some time off to just have fun!!). He takes his last final today and we have been assured by his school counselor that he has received enough credits and will be graduating with his class this weekend.

We have applied for three different scholarships and should be hearing back on those sometime in July, keeping our fingers crossed on that!

We have a great party planned for him on June 8th. If I can figure out how to do it, I will post a copy of the invite we sent out (thanks to our friend Chad for making it so cool!!!).

In case I forgot to mention it, he is still SEIZURE FREE and down to one medication! We go back for our check up in Cleveland in August and we can't wait to see our hospital friends! Thanks again to everyone for checking in with us and keeping up on Lance's progress.