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Kylie’s Story

Kylie was born on June 6, 2007 at Rice Memorial Hospital in Willmar Minnesota. Complication from the delivery has led to multiple health problems including spastic quadriplegic cerebral palsy, cortical impairment, neurological difficulties, and seizures.



Kylie was born on June 6, 2007 at Rice Memorial Hospital in Willmar Minnesota. Complication from the deliver has led to multiple health problems including spastic quadriplegic cerebral palsy, cortical blindness, neurological difficulties, and seizures.

 

 

 

 

Latest Journal Update

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Hi everyone.  I have been having a difficult time trying to get this site to save the journal entry the last few days, so lets give this one a whirl!  Kylie's surgery went well and the plates came out just fine.  Her recovery went different then what we had hoped so it ended up to be a long day for our little girl.. (Thank you to nurse Miranda who was there to help out so greatly!) After they brought Kylie to recovery we had to stay there a few hours.. Little punkin just had a little trouble with a few different things.  Her body temp only was up to 96 something, so that took a couple hours to get back to normal.  Next was pain control and so we were trying to get her comfortable so blood pressure and heart rate would go back to normal.  Lastly, the thing that took the longest was that she had trouble getting off the oxygen because her sats would drop right away. Thanks to a wonderful nurse named Courtney who just made a long day so much easier on us..  I knew Kylie would come out of it and surely she did. 
      Now shes just resting and trying to heal at home.  She's such a trooper like a said and takes it all in stride.  You know she's gotta be hurting and I don't think many of us could handle stuff like that.  I know I would be so scared.  My Grandmother, who sadly passed away this last May used to say this many times- "Kylie Christine is stronger then we will all ever know.."  Those words so true and are stronger now then ever!  Kylie now has some amazing guardian angels holding her! 
     We don't have to see Dr. England now for 6 months.  We have another appointment in St. Paul at Gillette with Dr. Ward just to check on things like her muscle tone, and how comfortable she is, little things to make her life easier. She is the doctor who does her botox and phenol injections.  
Thanks for checkin in!

Love always,
Matt Elise Kylie and Bria