Kyle’s Story

Site created on November 17, 2011

I was diagnosed with osteosarcoma of my left femur on November 7, 2011.  The diagnosis was made at Columbus Community Hospital.  I completed 2 cycles of chemotherapy at Children's Hospital in Omaha before having limb salvage surgery on Feb. 17 2012 at the Nebraska Medical Center.  I completed my chemotherapy in August of 2012, and for a while life was filled with school, scans and doctor's visits. Then a cancerous lesion was removed from my left lung in January of 2014.

After weighing the odds and considering several options, I elected to begin a clinical trial of inhaled chemotherapy (Cisplatin) at the Mayo Clinic.  I did 22 trips to Rochester before going off the trial due to decreased lung function.  In May of 2015, I started to cough up some blood and was found to have a large mass in my left lung which was removed at Children's in Omaha.  Unfortunately, this mass was present, and overlooked, by Mayo Clinic in February. Both my Children's and Mayo Oncologists recommended doing Chemo again with two drugs that I had not  received before .  I started treatment again on June 8, 2015 at Children's and completed it four months later.  



I had a relatively uneventful rest of my Junior year of high school.  Then in late May 2016, more tumors showed up resulting in a five hour surgery.  During the summer of 2016, I tried a study drug, denosumab (already being used for other metastatic cancers).  It seemed to work until October, when the tumors came back aggressively. I completed a cycle of more chemo,  then had a six hour surgery on November 14 to remove six more tumors.  Much to our surprise the pathology showed the tumors to be mostly dead.  With that information , we forged on with Gemzar/Taxol until April, 2017 when we had to stop due to side effects..  As of September 2017, there has been no recurrence of cancer and I am off to college!  We are seeking continued prayers and not letting our guard down!

Newest Update

Journal entry by Deborah Anderson

I started college classes this week at UNK after a busy summer.  I had appointments with my oncologist, my orthopedic surgeon, and my lymphedema surgeon. I had a good chest CT with no change in the multiple nodules in my lungs.  This good news was bittersweet as now I am "graduating" from Children's Hospital.  I will follow-up with a Primary Care doc rather than an oncologist, which hopefully I will never need again. The hardware in my left thigh and knee is still holding up well, and I don't have to see my orthopedic surgeon for another year.  My lymphedema surgeon would like to operate on my arm again sometime in the next year. Oops, just realized I didn't post that I had surgery on my left arm in December 2020 to try to redirect the lymph fluid (which accumulates in my left arm as the cancer had spread to my lymph nodes) into my veins.  That surgery has been helpful, but I still get severe infections in my left arm not infrequently.  The plan is to sometime in the future do a lymph node transplant from my abdomen to my arm.  I worked two jobs this summer before heading back to school.  I should wrap up my student teaching in the spring semester and then start teaching high school science where the good Lord leads.  

Thanks for all of your support and prayers through the years.  I likely won't be posting again unless there is a status change in my health.  This is Kyle Anderson, cancer survivor, signing off......
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