My Story

Samuel was born 2/21/08 and is home now! We are grateful everyday for all the nurses, doctors, family, and friends that are helping us. God has blessed this family.

We are happy to share our story with friends and family, as you have been willing to make time in your prayers and thoughts for us.

Journal

Thursday, October 22, 2009 10:24 AM, CDT


So, here are a few new picture of the little trooper!  He is happy when he is home with his family.  At the doctors...  that's another story.

So, we have a confirmed date of October 29th for the MRI.  This will be at UH in Cleveland.  I am sure they will figure this out and not tell me it is "just a fat back" as we have heard.  They were concerned when they say the bump back there.  I just want doctors that take me seriously and agree or are willing to consider when I say something is different.  Crimeny, it is his spine for crying out loud!!!  If fluid is out of place or leaking, he has no shunt to drain it.  His mind is one of the strengths that Sam has.  Why risk it?  So, I am praying for answers and hopefully a positive outcome on his MRI results.

Thank you so much to our friend that we never met, I don't think, for the MY BABY CAN READ program.  Have you all seen the infomercials on TV?  It is wild.  I don't know if we can teach Sam to read but, I think it will help with his language.  We are so excited to use it and I will let you all know if it is real.  THANK YOU.

Oh, and Mandy is back!  I was wondering what happened to you.  She always has a guestbook comment that we can all laugh and learn from.  Thanks Mandy. 

ANYONE LOOKING FOR SOME CHARITY WORK OR VOLUNTEER WORK, SAM NEEDS TRANSPORTATION TO THERAPY ONE DAY EVERY OTHER WEEK.  THE NURSE WILL GO ALONG AND YOU CAN WATCH, PARTICIPATE, OR DROP OFF AND JUST PICK UP.  IT IS CLOSE TO HOME AND SAM WOULD BE VERY GRATEFUL!!!  LET ME KNOW.  I WOULD HATE TO USE "SARTA" ALREADY!!!  PUBLIC TRANSPORTATION MAY NOT BE A GOOD IDEA THIS TIME OF YEAR.

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E-MAIL AUTHOR

nadia.kogeler@gmail.com

HOSPITAL INFORMATION

University Hospitals Case Medical Center
11100 Euclid Avenue
Cleveland, OH 44106-2602
United States
(216)844-1000