Kris Jacobson's Journal
Written Dec 16, 2013 11:16amHi, all,
Another monthly update.... I was just reminded I'm slacking! lol
I had another ct scan and everything is still stable. Love that word. Would love other words better, but since I'm stuck with this disease I will take stable.
I'm not really in the Christmas spirit this year. I can't seem to get rid of this "bah humbug" attitude. I know the holidays are the biggest time of year for depression... This is the first year I've experienced it this bad.
I'm thinking of going back on Xanax because of it, but haven't yet.
I know I should be grateful for my health, the great results of the trial, etc., but I can't help wanting a bit more. It's been quite a while since I've had someone special in my life and I'm really missing having a partner this year. It's getting depressing because it seems no one wants to get to know anyone anymore.
On another note... It looks like my Thursday night poker tournament may change to another night, so hopefully come January I can get back to dancing! That might help my funk!
And I leave Thurs. to visit mom & dad. And half of the clan. It will be great to visit with them for Christmas. I have to be back for New Year's, as I have another dr appt on NYE day.
Then when I get back, I HAVE to start looking for a job. Not only do I need the money, but getting back into a routine should help me out of this funk, too.
I hope you are all enjoying your holidays, and that you all have a great 2014!
More news today
Written Nov 11, 2013 4:45pmHi, all.
i know I don't update often, but really, there's not much to update these days. That's a good thing, right?
i went to see my radiologist today. I was stressing about it for some reason, mostly because I was worried I would have to make a choice. Dr. Meyer said that things look good. He recommends doing nothing different. Radiation would likely get me kicked out of the trial, and he doesn't believe I would be a surgical candidate either. I know I'm not a surgical candidate, so that came as no surprise.
SO. We will revisit again in 6 months. For now, just praying God keeps me healthy and keeps the drug working. If it ever gets a name, I will know what I'm taking! lol
oh, and on an aside... The drug company is starting a phase 2 of this drug. They are adding cisplatin, a chemo, to the drug. My onc isn't thrilled about it. I am not eligible, but if it proves successful, I can apply to be admitted to phase 2 in 6 to 9 months. As it is I am staying stable. That is a decision for next summer, IF adding cisplatin does anything good. If so, I will have to decide whether stable is good, or do I want chemo and getting sick every 2 weeks again? And since my body couldn't handle the other chemos, should I even try it?
here I go, thinking ahead again... I need to stop that and revisit it in June or July.
i hope everyone has a good Thanksgiving. My next scan is Monday after Thanksgiving. I'll let you all know the results when I get them!
Unexpected good news
Written Oct 9, 2013 5:34pmI went to see the onc Monday to find out the results of the latest scan. The results? SHRINKAGE! Totally unexpected since the drug is manufactured to keep things stable...
And blood work is good. The tumor marker is well into the normal range now. A few other things were low, but nothing to write home about.
All in all, a great day! Now if I could only get more of my life in order!