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Make Sure Krisanna Is Not Alone This Holiday Season

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Krisanna’s Story

       "Have a bright sunshiny yellow day!"

                                Krisanna Roberts

On May 26, 2009, 14 year old Krisanna celebrated graduation:  an MRI showed that the tumor bed remained stable following a 2004 gamma knife procedure on her third brain tumor, so she graduated to annual check-ups at St. Jude Children’s Research Hospital. 

 

Merely two weeks later, an MRI revealed that a tumor at the base of her spine was the source of pain she had been experiencing for a month as sixth grade wound down and the promise of summer beckoned.  She returned to Memphis for the summer.

 

For eleven years Krisanna Roberts battled an aggressive brain tumor called an Atypical Teratoid Rhabdoid Tumor.  She was St. Jude’s longest surviving AT/RT patient. The tumor first presented in the brain and returned twice following initial occurrence and treatment.  The fourth occurrence was the first time the tumor had presented in the spine.

 

Krisanna’s spirit and determination soared as she began what she called her “summer vacation at her home away from home” at Target House.  Arts and crafts was the name of the game ... and assigning each day a color unveiled the infinite spectrum of yellow for this pink and purple-loving princess.  In August, she returned home to Mobile, Alabama with big plans for seventh grade. 

On Septermber 1, Krisanna's spine scan showed that radiation had not reduced the tumor.  Hoping that long-term effects would reduce the size, Krisanna returned to school.  However, by the 3rd week of September, daily headaches, nausea, and emesis limited her activities.  By mid-October, she was in constant pain, eating little, and often dehydrated which home hospital visits helped only minimally.  We returned to St. Jude October 26 for a brain scan.

Shockingly, the scan revealed that the tumor had returned with a vengeance.  It covered her brain, and there were no medical options left.  Krisanna, however, didn't give up. She still had a lot of living to do!  With her Pollyanna spirit, she made big plans and celebrated every single day -- even the last in her hospital bed. She died in her "home away from home" on November 4, 2009.

Latest Journal Update

HAPpy BIRthday! (hear Frosty, the Snowman)

Krisanna's friend Miss Meridy and her Yellow Week team ..... they are AWESOME!  Miss Meridy misses bringing me Krisanna's leftover lunch :-)
Krisanna's friend Miss Meridy and her Yellow Week team ..... they are AWESOME! Miss Meridy misses bringing me Krisanna's leftover lunch :-)
Happy birthday sweet girl!  We are living in yellow all month long!  Miss Meridy and her Yellow Team have left the flags up to remind everyone that living in yellow is a life choice that continues beyond the "official week."  Even Mr. Wiley's posse wore yellow shirts last Friday.

Miss Donna sent me this picture of you and Tristen. I love getting pictures of you that I've never seen before!  They make me smile - especially when your smile is so big.  They take me back to those happy moments, and I hear your laugh.  You and Tristen were dancing away at that band banquet. Kenny got on his knees to dance with you and Sarah made you feel like a sister. 

Yellow Day begins its theatrical release today!  Forever the theatrical release of Yellow Day will be associated with your birthday - I marvel at that Krisincident. You always celebrated your birthday over the entire weekend (or month) and it's still happening. Your new friend Jeff has set up a special birthday showing tonight at Premiere Cinemas at the Eastern Shore Center at 7p. Aunt Mollie has carloads of peeps heading over to see it. Ashley will be there, too.  It runs all weekend long so fly around and inspire people to come see it.  It's an awesome movie.

Today is going to be a bright yellow sunshiny gorgeous birthday day ~ and we will feel you all around us celebrating. I'm wearing the yellow heart with flowers that you gave me!
We love you girlie girl ~ all the way to the moon and back double twinkle ...
Momu and Dad

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Comments

15 Comments

Calente Tapp
By Calente Tapp
Please call me 901-828-1857
Susan Holsombeck
By Love, Steve, Susan , Brett and Lauren Holsombeck
Happy Birthday!! Sweet Krisanna, you will always be remembered!! Lauren loved walking with you to Drama in the afternoons! It is a beautiful yellow day today and your movie premieres on your bday! 😊😀😃😄😘🌼🌻⭐️☀️
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Richard Daughenbaugh
By Rick Daughenbaugh
Happy birthday pretty girl
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Stephanie Rogers
By Stephanie Rogers
Happy Birthday, Sweet Girl! and Happy Belated Birthday to your dear mother!!! I love you both so very much!!!!
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Pat Johnson
By Pat Johnson
Happy Birthday sweet Krisanna!! Miss your big smile and big hugs!! Wait! I think I feel one of your hugs now!! Love and miss you!!
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Mollie Bell
By Mollie Bell
Such a great picture of Krisanna and sweet Tristan!! I hurt my side laughing at the comment abt mrs Meridy bringing left over lunch!! :) missing my dollface so much but looking forward to a birthday celebration tonight! So happy to be planning a guest list for a party for her even though she never met a lot of the guests. She would love to have them at a party though as long as they came with a big smile and a hug! She would proudly tell them all to put a brick on their head bc Adelaides friends shouldn't be taller than she was!! :) love you. See you tonight!! 😘
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Meridy Jones
By Meridy Jones
Happy birthday, sweet girl. I know you are dressed in full yellow and dancing today! I know your mom made you proud yesterday. We all miss you, but your presence is felt every day. 😊
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Anne Smith
By Anne Smith
Happy birthday to you and Krisanna!
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Kelly Darling
By Aunt Kelly
Happy Birthday Precious! I hope you take a peek here in Charlotte to see how we are celebrating you.
I love you.
Aunt Kelly
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Kelly Darling
By Aunt Kelly
Happy Birthday Precious! I hope you take a peek here in Charlotte to see how we are celebrating you.
I love you.
Aunt Kelly
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2 people hearted this