Update 02/11/14: Kori lost her 5+ year battle with Ewing's Sarcoma on 2/11/14 at 6:30PM CST. May she rest in peace and fly high with the Angels in Heaven.
Update 1/10/13: Unfortunately, the 3rd time was not our charm. But we have new HOPE!! Kori will be considered for a Phase 1 Clinical Trial at the Mary Crowley Cancer Research Facility in Dallas, TX on February 11th. We are praying that this is the answer to our prayers, & that once & for all Kori will kick Ewing's Sarcoma's ass & be able to live a somewhat normal life. I will keep everyone updated via our Journal entries, & want to thank all of you for continuing to follow Kori's journey & praying for her well being. It is much appreciated... NO words could tell you how much! Thank you & God Bless :))
Update: 7/28/11 - We found out today that Kori has relapsed for a 2nd time. She has multiple lesions (skull, pelvis and right femur) It's a lot to take in as there is no known protocol for a 2nd relapse of Ewing's. So today our journey begins again, but Kori is up for the challenge and we're hopeful that the 3rd time will be the charm!!
Update: 9/7/10 - Kori relapsed with a single spot to her lungs. She had a thoracotomy to remove the spot and thus began another round of Vincristine, Irinotecan and Temodar, along with radiation to the lungs and to her left tibia. She had a tumor in her left tibia that we had biopsied in August... the results were 99% Necrosis, but they still wanted to radiate and remove in early 2011.
February 2011 - Kori finished her radiation and chemo, and is doing well... thank the Lord :)) She had surgery on her left tibia to remove the tumor and we found out it was 100% necrosis (dead)... WOO HOO. She will be on crutches (no weight bearing) for 6, and then ween off of the crutches over the following 6 weeks while she undergoes Physical Therapy to build up her leg and stamina again.
April 25, 2011 - Kori had her port removed today, and we're praying that this is the LAST surgery she will ever have to endure. :)) Thanks be to God and to everyone that has continued to support us throughout this journey - we could not do it without you!!
Original Entry - December 2008: Kori was diagnosed with Ewing's Sarcoma cancer to her left pelvis with mets to the lungs in December, 2008. She was 13 years old at the time of diagnosis.
She has endured 25 radiation treatments and 14 rounds of chemotherapy, which lasted for 3 to 4 days inpatient for each round. She has undergone numerous tests and procedures, and has continued to amaze us with her tenacity.
As of today (01/18/2010), Kori is considered to be in remission. While we are ecstatic about this news, we are also determined to take this news 3 months at a time as Ewing's is a very aggressive cancer and has a tendency to come back with a vengeance. We will continue to celebrate each and every day and know that she is living her life to the fullest!!
I just wanted to thank everyone for all the kind words of support and love for our daughter, Kori E. Quinn. We are slowly getting through all of our Facebook posts and Caringbridge guest book entries, and HOPE to be able to thank each of you accordingly. Please know that we appreciate your support more than you'll ever know as this is by far one of the most difficult things that John & I have ever experienced. Thank you & God Bless :)