My Story

Kinley was born in April, 2012. At her 2 month well baby visit the doctor was concerned that she was jaundiced and her liver felt enlarged. She was sent to Cardinal Glennon Children's Hospital for tests. On July 5th she was diagnosed with Biliary Atresia, a rare liver disease in which the bile ducts in infants are absent or damaged and bile backs up in the liver causing scarring, cirhosis, and ultimately liver failure. She had a Kasai surgery that same day to attempt to drain bile by attaching a piece of her small intestine directly to her liver. Kinley initially did well with the surgery. In August and September her lab tests showed that the Kasai may not be continuing to work as well as we had hoped. On September, 26th her doctor at St. Louis Children's Hospital determined that the Kasai had failed and Kinley would need a liver transplant.

     Kinley was officially listed for a liver transplant on November 9, 2012 when she was 6 months old. After waiting for a transplant for 6 months, Kinley's health had become stable and she was changed to and inactive status on the transplant list. She will need a transplant eventually.

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Hannah Walker posted a new journal entry, "January transplant/liver clinic".

     Kinley had her transplant/liver clinic on Wednesday, January 8th.  She has been doing pretty well and everyone was very pleased about ... Read more

Hannah Walker posted a new journal entry.

     Tomorrow, December 1st, is the 4th annual National Day of BA awareness.  Early diagnosis is key in the survival of a baby with BA.  You could be the one to ... Read more

Penney Beccue signed Kinley's Guestbook.

That's wonderful news Hannah!  So happy to read this!  Have a fun flight and great time in Corpus! Read more

Hannah Walker posted a new journal entry, "November 2013 tests/liver clinic".

     Hi everyone.  Kinley had appointments yesterday for her 3 month check up.  We started the day with and ultrasound.  Kinley could not eat or drink for 6 hours ... Read more

Hannah Walker added a new photo.

Hannah Walker added a new photo.

Hannah Walker added a new photo.

Hannah Walker added a new photo.

Hannah Walker posted a new journal entry, "October Labs".

     Kinley had her monthly labs yesterday, and they are still not good, but the did NOT get worse.  That is good news.  I am starting to believe that they are just ... Read more

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