Kim’s Story

Site created on November 30, 2006

Welcome to Kim's CaringBridge site. We have created this website to keep friends and family updated on Kim's journey as she battles and beats brain cancer. Please check back periodically, read the latest in our Journal, view the photos, write Kim notes in the Guestbook and visit the Links for ways to offer support.

Kim is a 40-year-old bundle of fire and energy with an ever-present smile and boundless enthusiasm. She's a loving wife to David and a power mom to Devin (5) and Gavin (almost 3). An international transactional lawyer by training and experience, she loves to travel and is always up for a challenge.

Diagnosis

On November 16, 2006, Kim was diagnosed with an aggressive form of brain tumor known as anaplastic astrocytoma. In the "old" way of categorizing these things, Kim's tumor would be a grade "3" on a scale of 1 to 4. Unfortunately for this tumor, it picked the wrong head in which to take up residence.

History

Kim began having severe night headaches in late September. Her doctors advised that these headaches were likely migranes. Kim tried to schedule appointments with several neurologists but there was a two-month wait for the earliest available appointment.

On November 9, still thinking that we were dealing with migranes, Kim underwent an MRI scan of her brain just to be careful. The next morning, on November 10, Kim was called into the hospital and informed that the MRI had detected what appeared to be a brain tumor. Furthermore, a pea-sized portion of tumor was restricting the flow of spinal fluid through her brain, resulting in swelling (hydrocephalus) and thus the headaches.

Kim was admitted to Zale Lipshy Hospital at UT Southwestern Medical Center. She spent three nights in ICU to monitor the brain swelling, started taking steroids to reduce the swelling and began treatment to reverse the effects of blood thinners that she had been taking for a prior medical issue.

On Tuesday, November 14, Kim underwent "minor" brain surgery--a biopsy to remove a tiny portion of the abnormal tissue from deep inside her brain so that it could be tested and a diagnosis confirmed. On Thursday, November 16, we learned that the tumors were indeed cancerous--anaplastic astrocytoma. There are two main areas of abnormality: an egg-shaped spot about 2 cm x 1.5 cm deep in her left temporal lobe and a small pea-sized tumor in the center of her brain (between the third and fourth ventricles). Unfortunately, the tumor has also spread diffusely throughout a large portion of the left side of her brain, integrating with a significant amount of normal brain tissue, and has crossed the midline to a small part of the front right side of her brain.

Treatment

Because these tumors are located in "high priced real estate" within Kim's brain and due to the diffuse way in which some of the abnormal cells have integrated with normal brain tissue, the neurosurgeons believe it would be too risky at this point to try to remove these tumors through surgery. Therefore, we're moving on to the "gold standard" next line of treatment: approximately 6 weeks of simultaneous chemotherapy (Temodar) and radiation, a month off to rest, and then 18-24 monthly cycles of additional chemotherapy.

Kim began chemotherapy on Wednesday, November 22 (the day before Thanksgiving). The drug Temodar is a real blessing. She takes it in pill form each night right before she goes to sleep...no daily trips to the doctor, no port or tubes and, best of all, very minimal side effects. She has not suffered any nausea and the main side effects of the Temodar and the steroids have been tiredness, fatigue, some joint pain and a bit of a temporary chubbiness in her face...all VERY manageable considering the expected benefits of these drugs.

Kim begins radiation treatment on Monday, December 11. The fight is on!

Support

MANY family and friends are expressing their support and desire to help in various ways...so much love and attention, in fact, that it is becoming difficult to respond to everyone on a timely basis and to manage this wonderful outpouring. We appreciate your patience and understanding.

We are so fortunate that Kim has such caring and capable friends and a small group known as "Circle K" has formed to coordinate specific support efforts such as meals, carpools, children's activities, exercise dates with Kim (such as walking or yoga), transportation and "lifestyle coaching" to enable Kim to slow down and create a simpler lifestyle. The goal is for Kim to conserve energy and maintain the healthiest mental and physical state possible in order to be in the best position to conquer this disease.

If you would like to lend a hand in one of these areas, please contact any of the coordinators at the phone number identified in the first Journal entry on this site, or visit www.lotsahelpinghands.com/c/12195/ (http://www.lotsahelpinghands.com/c/12195/) and click "Contact a Coordinator" to send them an email requesting membership on that site, where you can view a calendar of needs and sign up to help.

Thanks to all who are coordinating, participating in and lending support to these efforts. Together we will win and, in the meantime, you are making life much more manageable and happy for Kim and her entire family.

Newest Update

Journal entry by David Monk

Surprise everyone!  David here with a quick (good) note on Kim and the Monk family.

As Thanksgiving approaches, please know that when the Monks sit down at the dining table for turkey and dressing next week, we’ll be giving thanks for many, many blessings, including your friendship and kind support for us through the years.

And it has been a few years.  A few years (7) since my last CaringBridge post in 2014 following Kim’s surgery for a brain aneurysm.  A few years (10) since Kim’s surgical resection of a recurrent brain tumor in 2011.  A few years (11) since Kim ended chemotherapy treatments (for the first time) after 3½ years.

And a few years since Kim was diagnosed with terminal brain cancer on November 16, 2006, began aggressive radiation and chemotherapy, and was told to start thinking in terms of 6 to 18 months of life remaining.

This week, Kim celebrates fifteen (15) FIFTEEN!! years of survival!  We hope you’ll take a minute to join with us in celebration of this miracle, and in giving thanks for all that we’ve been able to do and experience together since this journey began.

Fifteen years ago, Kim and I had just celebrated our 10th anniversary, our two little boys were 5 and 2, we had never owned a pet, and we had just moved into our “new” house on Greenbrier.  Friday nights were “family nights” and Saturday nights were “date nights.”  Since then:

  • Kim and I celebrated our 25th anniversary this June;
  • Devin is a 20-year-old sophomore at Vanderbilt University, majoring in Human and Organizational Development with a minor in Data Science, and is Rush Chairman of the ATO fraternity;
  • Gavin is a 17-year-old senior at Highland Park High School, is a leader in their championship drumline, plays guitar and is applying to colleges;
  • Theo (Thelonious Monk), our wheaten terrier, is 10 years old and, I’m told, has his own Instagram page (theomonk_official);
  • I just celebrated my 11th year at RealPage, the software company where I continue (after an IPO, many acquisitions, and a private equity LBO) on the executive management team as EVP, Chief Legal Officer;
  • Kim is happy and relatively healthy and continues to be the uncontrollable “sparkle” in all of our lives;
  • We’ve lived in our new “new” home on Centenary for 3½ years now;
  • Family nights are much harder to come by, but cherished when they do; and
  • Date nights continue unabated.

I obviously haven’t been on CaringBridge in a really long time.  It’s amazing to look back through the postings from years ago and remember the challenges we faced and conquered, over and over, during the last decade and a half.  Kim’s 15 years of survival (and counting) are more than we dared consider in the beginning.  Unfathomable, really.  And now, as weird as the last two COVID years have been for everyone on the planet, we just roll with it since we learned long ago to be thankful for Every. Single. Day.

Kim and I hope the approaching holidays are fantastic for you and everyone you love.  Please enjoy, reminisce, and remember how important you all are to us … whether we last spoke 15 minutes ago or 15 years ago. 

David

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