Thank you so much for caring enough about our family and precious little girl to read an update on her. Kennedy Grace was diagnosed with Acute Lymphoblastic Leukemia on April 27, 2007. Click on My Story to get the beginning details and we will keep the journal updated of her progress as the days go by and her specific prayer requests.
Kennedy Grace, age 3, was diagnosed with Acute Lymphoblastic Leukemia (ALL) on April 27, 2007. She begins treatment April 30, 2007.
Ok where do I begin except to say this is not where we thought we would be. It all started this past week when Kenny Grace kept complaining that her legs hurt. She was still walking so we kept ruling out a broken leg. By Wednesday she really wasn't playing much and really limping. By Thursday she started running a fever and kept complaining of her leg hurting. I finally called the Scottish rite hotline and the nurse told me leg pain followed by fever isn't a good sign if she complains tomorrow I ought to take her in to get checked. By 10:00 she had complained of her legs hurting so I got her an appointment at 2:40. The more I thought about it I knew my doctor didn't have an xray machine or couldn't take blood he would just send us to Kennestone so I figured I'll just take her to one of those satellite centers.
The doctor there continued to tell me how pale he thought Kenny Grace looked and I proceeded to tell him "No she just looks pale next to me and all my kids look pale". He ran some bloodwork and told me her platelets were really low. He wanted to call a specialist here at the hospital and within minutes we were told to go immediately to Children's and that we would be there for several days. It was there that the diagnosis was confirmed leukemia.
By Saturday we knew it was the best kind of leukemia to get. A.L.L has a great cure rate and the fact she is a girl makes it even better. Hallelujah!!! So we have cried the first 48 hours and now we are on our road to recovery and looking forward to finding out how God is going to use this for his Glory!!
It has been a long time since we have been on caringbridge. So much has happened, we thought we would give everyone an update on Kennedy's progress since last time.
Kennedy has now been over two years off chemotherapy. This past August she made it to Survivor Clinic. Yeah, that has been a wonderful milestone for us. In Survivor Clinic, their main concern is not about Kennedy's leukemia returning but more about investigating all the side effects from her chemotherapy drugs during treatment. They ran a battery of tests. It was an all day event at clinic and Kennedy did great. Kennedy has some side effects from chemo that we are trying to work on daily, some that we knew about and some that we didn't. Kennedy suffers from many different learning disabilities due to putting methotrexate in her spinal fluid monthly for two years. She also has weak eye muscles from vinchristine, and her bone density scan came back low due to all the steroids she had to take. We are also keeping our eye on a bladdar issue from a drug that can do severe damage to your bladder. However, she had a small amount of that drug and was given fluids for 3 hours after so we are just praying that the bladder issues go away. In the grand scheme of things, these side effects we happily live and deal with as we are so grateful she is cancer free.
This past year we took Kennedy out of a small private school. As we would never regret the time she had at Midway, it was obvious the time had come to change. Midway had such a huge impact on Kennedy's spiritual and prayer life that we will forever be grateful for. It is amazing whenever Kennedy hears a siren, she stops what she is doing and prays for whoever is injured (a true thanks to Diane Coleman). When Kennedy prays at dinner, afterwards our whole family just look at each other like, "WOW that was the most precious prayer we have ever heard". Priceless for sure. The role models she had as her teachers have taught her more important things than academics for sure!!! However, Kennedy suffers from learning disabilities that just required more help.
After meeting with our local public school, we felt that was where God was leading us to put Kennedy for 2nd grade. Everyday since last April that we would go by Frey Elementary, we would pray for Kennedy's teachers and that she would be blessed with a sweet friend. If Kennedy was in the car, then she would also stop and pray as we drove by. I can tell you, once again, God has not let us down. We are tickled pink with Kennedy's teachers, and they way they are willing to work with her. She is getting more help than Kenn and I ever thought possible in a school day. But the absolute best part is that Kennedy is so happy. Her self confidence has gone through the roof. We have been blown away by the many changes in Kennedy since school has started. WOW, what a little self confidence can do for a child is amazing. God has truly answered our prayers. Kenn or I go eat lunch with Kennedy maybe once a week. Her little friends are precious. God is so good. He once again has answered every prayer we prayed as we passed that school all summer.
Thank you so much for constantly asking about Kennedy. I know there are a lot of you that still pray for her daily, thank you. She is our little miracle, and we know God has a great plan for her life. I pray every day as she is about to get on the bus (which she absolutley LOVES) that she will be a light for Jesus. Kennedy told me that one day there was a boy making fun of one of her friends. Kennedy and another little girl stopped playing at recess, held hands and prayed for their friend. Uh, to us that is being a light!!!
We would appreciate your continual prayers for Kennedy and her learning. We have come far but still have far to go. However, we really see a light at the end of the deep dark tunnel. That tickles our hearts!!!
September is childhood cancer month. It is amazing that of all the money raised for cancer today, the government only puts 3% of cancer reasearch funds go toward finding a cure for childhood cancers. The picture on this site is one of Kennedy getting to be a model for the Rally Foundation. It was a great event and raised a lot of money. Kennedy was being escorted by a Falcon Football Player and couldn't have been happier. There are wonderful foundations out there that do so much to find a cure and walk by families during their cancer journey.
Many thanks to those who read this and lift up a prayer of thanks to God on our behalf. We are truly grateful for your prayers and your friendship.
Here is an adorable video of the fashion show. It is worth the 4 minutes.