I have been slacking with updates. Kevin is doing terrific. He is in his third year at University of Kentucky. We are approaching 5 years since diagnoses, God is so good. He is a miracle. Kevin is taking a full load of classes, going to basketball practice, stepping out of his comfort zone, meeting new people, and taking care of his service dog, Aria. Aria is a beautiful black lab. She can do some pretty amazing things like up doors, pick up things that kevin may have dropped, find help if he needs it, help remove his socks and shoes and so much more. Aria is his protector, best friend, gives him love and affection. ICAN is who we received Aria through. ICAN is a group of very dedicated people providing training and support for the dogs and people with all abilities. It is an amazing organization.
Angie Fischer, a mother from Kentucky who has been following Kevin's journey since the beginning, wrote a children's book inspired by Kevin's story. The book is being sold on Amazon titled Basketball Dreams and Wildcat Prayers. A portion of the proceeds will go to help fund Kevin's college dreams You may go to the link to read more about it http://www.hawkinspublishinggroup.com/kevin-massey-scholarship-fund.html
College is expensive and it is going to take Kevin probably 5 years to graduate from UK but he will do it that is for sure. This year we have 2 students at UK Marissa is now a freshman there. She is loving her experience there and she helps Kevin so much too. But don't get me wrong Kevin has been in Kentucky for 2 years without her and managed quite well but having her and Aria there is an add comfort. I look at my kids and thank God everyday for each of them. Duke married Jennifer this summer. They are doing extremely well. I wouldn't complain if I was to become a grandma soon. lol. all in their own time, right. So now you kind of get why it has been a while since updating caringbridge. Now that Dwain and I are empty nesters and 2 in out of state college our house is extremely quiet so I went out and got a second job. We have a large tuition bill due by Christmas so why not work part time to help with paying for my kids going after their dreams. Being on this journey gave us a new perspective on going after your dreams and how short life is. Dream big, go hard after them, be happy, laugh often and make many memories along the way.
The other day, I received a call out of the BLUE
from a great friend and COACH of ours. Just to check in with me and tell me how proud he is of Kevin and that he prays for him everyday still at mass. Coach Cal said almost every practice Kevin comes in with a smile on his face and brings laughter to everyone. Not too many people of his stature would take the time to do all that he has done for Kevin and our family. He is truly a great person as well as a coach. Coach Robic and the rest of the guys are family to Kevin. Coach Robic looks after him like he is their son. It is amazing to me that no matter what is going on Kevin can count on them for anything! Complete strangers who was touched by Kevin's story almost 5 years ago.
Kevin journey with DIPG has been a rough one and also a blessing in so many ways. Where would we be? What ifs? Should have beens? Could have beens? Survivors guilt? Tend to creep in our thoughts and we have to fight it off. This is what God has planned out for us, we just have to walk the path letting him take the lead. Keep the prayers coming!
You Got This, Kev!