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Ketren’s Story

My name is Ketren Waites and I'm a happy 2-yr old little boy. I love airplanes, cars, motorcycles, Mickey Mouse & playing ball. On April 28, 2011, I was diagnosed with Acute Lymphoblastic Leukemia. My mommy created this website to keep our friends & family up to date with my treatments & the 3 1/2 year journey down the long road to beating this. Please sign my guestbook & let me know you stopped by.

Thank you,

Ketren :)

Around mid April of this year I started to have a limp in my right leg, my mommy took me to the doctor right away and they did all the standard exams and x-rays. Nothing was ever shown on a routine visit or any of the x-rays so the doctors advice was to just "wait it out" because it could just be a stone bruise, growing pain or hairline fracture. Well, if you know  my mommy, she doesn't "wait" very well...she persisted with the least 1-2 visits a week with "why why why" because my limp not only got worse, but I had finally resorted to crawling instead of walking due to the pain. My mom was finally able to get a referral to a Scottish Rite orthopedic doctor and we were on our way....answers! (hopefully) Well once we got to this doctor they ordered a CAT scan, thank goodness my mom, dad, and 2 other nurses were there to hold me down while they iv-d me because I'm a strong boy and all those grown ups were sweating by the time they got my drip going! I was sedated and had the scan done, we were not even out of the Scottish Rite parking lot when the ortho doc called and wanted us to see a hematologist because there was some dark bone marrow showing on my mom, not knowing what this meant, again asked, why why why? That's when the doc said "Well, we just want to rule some things out...I don't want to scare you, but we need to rule out leukemia." And so it began, my mother went hysterical for the first (of many) times thus far. The doctor did say she would have the hematologist look at the blood the next morning and call us with an update, boy, that was a long night! But sure enough, the doc called the next morning and said "good news, the hematologist looked at the blood and didn't see any osteoblasts which are characteristic in leukemia patients and Ketrens white blood counts are good so we can probably rule out leukemia" HALLELUJAH! I think we all danced for an hour, however, the doctor still wanted us to follow up with the hematologist the next week. And we did. Uh-oh......

When we showed up at the Scottish Rite Aflac Cancer Center and Blood Disorder office the next week they immediately did blood work on me, shortly thereafter the doctor came back into the office and said they were sending my blood off for a "flow" test which tests for leukemia since he saw some "suspicious" cells in my blood....can you imagine the confusion in the room? (hysterical cry #2 for mom by the way). Then the doctor said that regardless of the tests outcome they still needed to admit me because I obviously had an infection in the bone/blood of some type that needed to be treated with antibiotics, so onto "Hotel Aflac" we went for our admission with the ever impending doom of the call later for the results of the "flow" test....

It was about 9:30 that night and we were in room 194 and the phone rang, in the room was me, mommy & daddy, and on the phone....the  doctor with the test results...daddy answered the phone, and mommy knew by his face what he was hearing, she also saw the tears welding up in daddy's eyes and she knew, I had leukemia. Daddy hung up the phone, hysterical cry #3 for both parents. The doctor came over right away in spite of the late hour and spent time explaining to my parents what I would be going through the next few days and that my type of leukemia, ALL, was the "good" kind if there was such a thing because it has a very high survival rate. The doctor also explained things such as me getting a port-a-cath inserted into my chest and getting a spinal tap as well as beginning my chemo....and so my 3 year fight began....