Kenny Hill's Journal
Written Jan 20, 2012 6:46pm
Hello Everybody & Hello 2012!!!
We would like to share with you what Kenny Hill has been up to this holiday season.
As most all of you know, Kenny had Gamma Knife Radiation performed in September on the one tumor in his brain. Gamma Knife Radiation is a pinpointed laser beam of radiation designated for one particular spot. Gamma Knife does not automatically get rid of the tumor, but it will cause it to shrink. This type of radiation can continue to radiate in the brain for 12 to 18 months. Kenny came thru the procedure with flying colors.
A couple of weeks later, we started to notice some changes in Kenny. He was confused and his balance was really bad. A trip to Dr. Abramson office revealed that Kenny had developed an edema in the area where the Gamma Knife Radiation was performed. (Note, developing an edema after Gamma Knife is a common side affect of the procedure). Dr. Abramson admitted Kenny to the hospital for a week, so that he could receive iv medication to treat the edema. Once the edema had decreased in size, Kenny was released. Kenny improved for a short period of time. But soon his health started slipping again. In November Kenny’s speech, balance and other abilities had been significantly affected. And even after spending another week at University, and two (2) weeks at the Walton Rehab Center, where Kenny went thru several hours of physical therapy, occupational therapy and speech therapy daily, there was little overall improvement. Kenny was released from Walton. Once at home, the therapists from Trinity Home Health continued to work with Kenny to improve his speech, cognitive and physical capabilities.
On December 6th, Kenny had an appointment with Dr. Abramson. A CT scan at Dr. Abramson’s office revealed that the edema had increased in size. Dr. Abramson felt that a shunt would be necessary to resolve the edema and release the fluid and pressure on Kenny’s brain. Kenny went from Dr. A's office straight to University for admission. He was admitted to the NEURO ICU and on December 7th a ventricular shunt was placed in Kenny’s brain. The doctors were able to manually release fluid and pressure on Kenny’s brain.
While the shunt was a blessing, it did not help Kenny become more alert. The team of Drs. started new tests and determined that Kenny was having multiple whole brain seizures. (Note, Kenny has been on a seizure medication since the initial brain surgery last April). The next couple of weeks were spent with the doctors regulating Kenny’s seizure medications and getting the seizures under control with the right cocktail of meds.
Dr. Abramson & the team ordered no visitors during this time. He did not want Kenny to get overly excited or stimulated. Kenny had to remain completely calm so as to avoid any additional seizures. Unfortunately it took weeks to stop the seizures. Follow up scans showed that the seizures were finally under control, but they had caused some damage. At this time, it is not known if this damage is temporary or permanent. Only time will tell.
Once Kenny & the medications were stable, he was released from the hospital on January 6th. We returned home and are now settled into a routine schedule of nurses, aides, therapist and visits. Kenny is tolerating visitors well.
Kenny’s communications skills are still impaired, however he is very aware of his surroundings and comprehends more than he can communicate back.
All of you are welcomed and encouraged to come and visit. We ask that you keep your emotions in check and not do anything that would cause Kenny to become overly excited or overly emotional. We do not want to risk him having a seizure. If you have a cold, a cough, the sniffles or the flu, we ask that you visit on a day when you are in better health. Please visit often and limit your visits to about 30 minutes each time so that Kenny will not be worn out.
Thank you for all of your prayers. We believe that this is why Kenny is still with us today. Please continue to pray for him and his journey through this illness.
Please come to see us and bring him your love and joy!
Thank You & Blessings from the Hills!
Kenny, Frankie & Ray
Written Sep 16, 2011 5:07am
Happy Birthday Kenny!!
Kenny received a couple of early birthday presents this week.
First, Dr. David gave Kenny the results of the CT scan on his lung. The tumor in his lung is almost gone. He has completed 5 chemo session and has a 6th scheduled for October. Once that session is completed Dr. David will order more test to see if additional chemo treatments will be necessary.
Second, the MRI on Kenny brain showed that the remaining tumor is still shrinking. Dr. Abramson and Dr. Dasher have decided that it is small enough now that we can proceed with Gamma Knife Radiation and get rid of it!!
And last, but not least, Kenny passed his modified barium swallow test and will be getting his feeding tube taken out. Yippee!!!!!
As each day and week goes by, all of his doctors are over joyed with how well he is doing. His weight is up, his appetite is good and Kenny continues to grow stronger. He has come along way and has over come so much. It is truly amazing what modern medicine, pure will and determination and the power of prayer can accomplish!!
Thank you to our Lord and Savior, for the wonderful gifts that have been bestowed upon us!!
Thank you lord for this joyous day! Happy Birthday Kenny!!!
Written Aug 6, 2011 7:22am
Praise be to God !!! And the blessings he has bestowed upon us!!!!
Kenny has completed his 4th round of chemo. Dr. David has ordered ct scans for later this month and has advised us that Kenny will have at least two more rounds of chemo, maybe more depending on the scan results.
The swallowing issues continue to improve. Kenny is able to eat more on his own and in fact has gained 18 lbs. His swallow therapist hopes that we will be able to remove the feeding tube by September.
The best news of all this week came from Dr. Abramson. Kenny had a MRI of his brain on July 27th. Dr. Abramson wanted to see how the two brain tumors were looking. The results came in and there is only ONE tumor left. The other one is TOTALLY GONE!!! The remaining tumor is very small. Dr. Abramson wants to give the radiation one more month (radiation continues to radiate inside the brain for several months after the treatments are completed) and we will check the tumor again. At that time if there is any of the tumor remaining, Dr. Abramson will use the Gamma Radiation Knife to remove what is left.
Please pray that Kenny continues to tolerate the chemo treatments. Pray for good ct scan results on his lung! Pray that the tumor in his brain continues to shrink.
Thank you for all the prayers!! The power of prayer is a wonderful thing!!!