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Mi historia

Welcome to our CaringBridge website. We've created it to keep friends and family updated about Kennedy 

Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.



On April 6th, Kennedy was taken to the ER for significant swelling and pain in her right thigh.  This was the height of some generally annoying pain she had been feeling off and on for a few weeks that had made her develop quite a limp at times.  No one would have ever thought that a week later, following multiple tests, scans and a biopsy that she would be diagnosed as having Ewing's Sarcoma. (Upon final review of pathology this diagnosis was changed to Osteosarcoma on April 22nd)  Thankfully all tests indicated that it is localized to the right femur.  At the time of the biopsy the tumor was estimated to be 26 cm, located 5 in above her knee.  Again, a blessing that her joints, knee and hip, are unaffected. 

Surgery to remove the tumor is necessary, however it must be shrunk.  So, this means Kennedy will begin a chemo treatment regimen for three months prior to surgery to reduce the size of the tumor.  The surgery will entail removal of the affected bone and tumor, with reconstruction using a donor bone and/or rod combination.  This will all be more clear as time goes by.  After surgery she will again have to take another three to four months of chemo. 

Kennedy is truly a one of a kind kid.  She is no doubt apprehensive about what to expect, but has accepted this entire situation with a grace that is amazing!  I have always said there are blessings in every situation and already I have witnessed so many in the past two weeks--I can only imagine what this young lady has in store for us all!  God is good, and we will continue to "Praise him in this storm." 

Fuente

Amy Griffith posted a new journal entry, "Paradise found...".

As the majority of you know, Kennedy left this life at 3:27 am Tuesday morning, whole, healed, running through the gates of heaven.  I have struggled since to find the ... Lea más

Amy Griffith posted a new journal entry, "Paradise found...".

As the majority of you know, Kennedy left this life at 3:27 am Tuesday morning, whole, healed, running through the gates of heaven.  I have struggled since to find the ... Lea más

Amy Griffith posted a new journal entry, "The final round....".

It's with a heavy heavy heart I am posting at this time, but it seems I must interrupt this very personal time to be sure everyone has the correct story. Kennedy is ... Lea más

Amy Griffith posted a new journal entry, "Pain management".

After battling severe pain all weekend and under the advisement of hospice and Dr. Gratias, Kennedy was transported to TC Thompson this afternoon.  She was finally ... Lea más

Amy Griffith posted a new journal entry.

Kennedy arrived safely home this past Friday afternoon.  She handled the trip well and was glad to be back comfortably resting at home.  She went to clinic at TC ... Lea más

Amy Griffith posted a new journal entry, "answers...".

Kennedy arrived in Houston yesterday and after a long day of appointments and PET scan today, there is finally some definitive light on her condition.  Unfortunately it ... Lea más

Amy Griffith posted a new journal entry, "In search of a PET...".

It has been a week and still there is not clarification to the bone scan done last week.  Dr. Anderson in Texas told Pam (last week) to send the information to him and ... Lea más

Amy Griffith posted a new journal entry, "unclear scans, lots of questions...".

Kennedy went to clinic for counts and the bone scan yesterday.  Her counts were very good.  The results of the bone scan are still to be clarified.  The one large ... Lea más

Amy Griffith posted a new journal entry, "Happy Halloween!".

Halloween festivities and internet issues kept me from updating last night, but good news is good news no matter.... Kennedy went to clinic yesterday and got another very ... Lea más

Amy Griffith posted a new journal entry, "Decisions, decisions...".

FIVE WEEKS folks and the tumor in Kennedy's lung has been stable.  This is pretty well unheard of for a child in her circumstances five weeks ago, sent home from MD ... Lea más

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