Welcome to our CaringBridge website. We've created it to keep friends and family updated about Kendall. Get started by reading the introduction to our website, My Story.
Visit often to read the latest journal entries, visit the photo gallery, and write us a note in our guestbook.
Kendall was diagnosed with Cystic Fibrosis at the age of 7 in 1997. We had just moved to San Antonio, TX after 2 years in Korea. He received care at Wilford Hall on Lackland AFB and did great once he received necessary treatments. In 2001, he contracted nontubercular mycobacterium abscessus, which required IV antibiotics at home plus inhaled antibiotics.
In 2003 we moved to Colorado and Kendall started receiving care at The Children's Hospital in Denver. He was hospitalized frequently and had trouble with gaining weight until March 2007. From that point on, he avoided hospital stays by staying vigilant with is treatments.
In July 2009, he had a bad bout of hemoptysis which required an interventional radiology procedure they call "coiling." We kept a Caring Bridge website on the classic version, but I (mom) decided to switch to the new version now. His old site is at http://www3.caringbridge.org/tx/kendall/ I am moving the last journal entry from that site to be the first entry here.
Well, it's been a rough year, what can I say. And I was saying that before March ended. UGH! Kendall has been in and out of the hospital 5 times. Had hemoptysis, coughing up blood, and at one point it went into overdrive and they had to intubate him, then do a procedure to plug up the arteries to cut off the bleed. There were two spots they found, so the doc put microspheres in those two arteries to stop the bleeding. First time seeing our son intubated and it was very NOT fun. After going home from that hospitalization, he and I both got really sick with some kind of bug, so they wanted to admit him again.
We dealt with a lot of incompetence due to lack of communication between nurses, respiratory therapists, clinics, doctors, etc. Eventually it led to a knock down drag out fight and we had a room full of officers and higher ups and we let them have it. They FINALLY figured out what we'd been saying the previous 2.5 months and Kendall demanded to be sent home. Everyone agreed if he would promise to do 4 treatments a day and eat better. Everything was on track for discharge, when he coughed up a lot of blood again. But he did get to go home the following day when it stopped and didn't happen again and I got my birthday wish two days later and we were all at home AT THE SAME TIME!
In the middle of all that, my dad got very ill and was found to have liver cancer. His meds weren't metabolizing and he had a bout with delirium and ended up in the hospital, then to rehab, then home (which I was NOT happy about. He's not really himself and is doing weird things.) I was hoping to go see him and help out, but two days after my birthday, I broke my foot and have been in pretty bad pain ever since.
Oh, and one of my sisters is going through testing for cancer. More tests ahead so no answer there yet. So you can see why I'm looking around dazed, saying "OK, I'm done with 2014 - it SUCKS!" And for the cherry on top of this sundae aka SH** Storm, last weekend we lost one of our 6yo kitties to cancer. And, it's not even mid-April! So I'm in "One step at a time, one day/moment/breath at a time." Kendall's health remained pretty fragile until finally this week, we got good results on his lung function test and he's regained about 5lbs of the 15 he lost from January through mid-March. And until that good day at the doctor's, he'd been on oxygen 24 hours, too because his O2 sats were dropping below 90 without it. We got portable tanks, but they are heavy, so since he is getting better, the strain of carrying those might be negating the benefit. We bought a treadmill to make it easier to get exercise. It IS south Texas and we have had several days over 90 degrees already. Ugh!
I'm thrilled to have a treadmill again after we burned the last one out. But of course, I haven't even been able to use it because of my broken foot. If it starts feeling better and I forget and walk normally, I'll pay for a few days afterward. Not sure why I'm writing this, the only person who reads this already prays for us EVERY day and she keeps up with me on Facebook! (Hi, Lynn! Love you!)