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Kelly’s Story

Hey Everyone,
Thanks for all the prayers and support you have given me.  Corey, the kids and I can feel your presence with us.  This has been an unexpected journey, a bump in the road, but I am determined to come out on top.  They have labeled it Small Cell Lung Cancer and I have been told, I am a very rare case.  It metastasized almost immediately to the liver and bones.  It is also a disease that is typically not found in people my age who have lead a healthy life.  You can read my background story to get the full scoop.

Love, Kelly
It all seemed to start in November 2012.  My right leg began to hurt.  It lasted about one day and then it went away.  I met with my doctor, they checked for a blood clot and endometriosis.  Both tests came up normal.  Each month the pain returned and seemed to last a little longer.  In March, I ended up in ER with severe pain in my leg and lower back.  They were able to get the pain under control and sent me home with instructions to contact my doctor after a couple of days.  It was during that conversation that I was referred onto a different doctor who immediately scheduled an MRI of the lower back, thinking it was a pinched nerve or herniated disk.  Later that night, I received a call from my doctor with the result.  They did not see what they were looking for, but the radiologist had contacted my doctor with concerns regarding abnormal bone marrow numbers.  Two more MRIs were scheduled for the next week.
Luckily, unluckily, the day of the scheduled MRIs turned out to be a bad pain day for me.  The radiologist came out and asked me about what has been going on and decided to do an MRI and a CT Scan from the chest down.  My day had started out at 8:00 AM and I was finally released at 6:30 PM after undergoing a liver biopsy.  The CT Scan had shown spots in the left lung, liver, pelvis, hips with abnormal bone marrow in femurs, pelvis and lower back.
We waited out the weekend, hoping for an explanation of what we were up against.  Several days passed and I called the radiologist who checked on the status of the results.  Bemidji had forwarded it onto Fargo who diagnosed it as a small cell neuroendocrine tumor originating in the lung.  It was at that point that we were referred to Mayo for further testing.
April 22, 2013, we began our journey at Mayo.  First a MRI of the brain at 8:30 AM, then blood work and finally a PET Scan of the entire body.  Testing finished at 3:30.  We met with our Oncologist at 8:00 AM on Tuesday.  Good news, the brain is clear.  Bad news, the spots that were already identified were confirmed to be small cell lung cancer!  No one can identify how I got it, but the fact of the matter is that I have it.  Now let the battle begin.  I plan on winning!!!

Latest Journal Update

Good Curveball

Just when we think we have our schedule under control, our doctor threw us a curveball! It's time to switch up our chemo treatment. I am switching to an oral chemo, twice a day for 18 days. Side affects may be the same as any chemo, but the good news is I am on my way home!!!! Our schedule now is one overnight once a month down at Mayo. What will I do with all my time at home:) Crazy thing this chemo is one that I have had before, now I will be taking it in a pill form.

I am back accessorizing with hats. My head has a landing strip down the middle.

Thanks for all the prayers and support!

Love, Kelly
38 people hearted this


25 Comentarios

Kathryn Faver
By Kathy
Your spirit is so strong Kelly and our prayers continue. Love your humor!! :)
Jessica Chouinard
By Jessica Chouinar
So good to hear you get to go home! Thinking and praying for you always.
judy porter
By Judy and Ron
You are always so positive about whatever is necessary to knock out this cancer! We pray for you and the family ever day!
Tom and Nancy Johnson
By Tom and Nancy
I bet that was a surprise - but sounds like it will be a lot easier!! You are too funny - I don't know that have ever heard of a person's hair loss creating a "landing strip" before :) I am sure you will manage to find something to occupy your extra time at home - the kids will help you if you have trouble coming up with ideas. Love and hugs to you - prayers continue!
Natalie Carlson
By Natalie Carlson
So happy that you can be home more with your family, Kelly. Prayers continue.
Kae Johnson
Yes, a good curveball - so happy you will be able to have more time at home.
Robert W. Zarrett, MD
By Robert W. Zarrett, MD
We're praying that the new chemo regimen works wonders! Welcome home!
Love and prayers always,
Bob & Sharon
Sharon Gainor
By Sharon Gainor and Family
Thinking of you and pray for success with this chemo
Susan Wiste
By Susan Wiste
I am so happy for you and your family, Kelly. Prayers are answered and still being sent. xoxo
Jeannine Huffer
By Jeannine
Bless your heart Kelly, you are an inspiration to all of us. We love you, God bless.