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Kelly’s Story

Hey Everyone,
Thanks for all the prayers and support you have given me.  Corey, the kids and I can feel your presence with us.  This has been an unexpected journey, a bump in the road, but I am determined to come out on top.  They have labeled it Small Cell Lung Cancer and I have been told, I am a very rare case.  It metastasized almost immediately to the liver and bones.  It is also a disease that is typically not found in people my age who have lead a healthy life.  You can read my background story to get the full scoop.

Love, Kelly
It all seemed to start in November 2012.  My right leg began to hurt.  It lasted about one day and then it went away.  I met with my doctor, they checked for a blood clot and endometriosis.  Both tests came up normal.  Each month the pain returned and seemed to last a little longer.  In March, I ended up in ER with severe pain in my leg and lower back.  They were able to get the pain under control and sent me home with instructions to contact my doctor after a couple of days.  It was during that conversation that I was referred onto a different doctor who immediately scheduled an MRI of the lower back, thinking it was a pinched nerve or herniated disk.  Later that night, I received a call from my doctor with the result.  They did not see what they were looking for, but the radiologist had contacted my doctor with concerns regarding abnormal bone marrow numbers.  Two more MRIs were scheduled for the next week.
Luckily, unluckily, the day of the scheduled MRIs turned out to be a bad pain day for me.  The radiologist came out and asked me about what has been going on and decided to do an MRI and a CT Scan from the chest down.  My day had started out at 8:00 AM and I was finally released at 6:30 PM after undergoing a liver biopsy.  The CT Scan had shown spots in the left lung, liver, pelvis, hips with abnormal bone marrow in femurs, pelvis and lower back.
We waited out the weekend, hoping for an explanation of what we were up against.  Several days passed and I called the radiologist who checked on the status of the results.  Bemidji had forwarded it onto Fargo who diagnosed it as a small cell neuroendocrine tumor originating in the lung.  It was at that point that we were referred to Mayo for further testing.
April 22, 2013, we began our journey at Mayo.  First a MRI of the brain at 8:30 AM, then blood work and finally a PET Scan of the entire body.  Testing finished at 3:30.  We met with our Oncologist at 8:00 AM on Tuesday.  Good news, the brain is clear.  Bad news, the spots that were already identified were confirmed to be small cell lung cancer!  No one can identify how I got it, but the fact of the matter is that I have it.  Now let the battle begin.  I plan on winning!!!

Latest Journal Update

Good Curveball

Just when we think we have our schedule under control, our doctor threw us a curveball! It's time to switch up our chemo treatment. I am switching to an oral chemo, twice a day for 18 days. Side affects may be the same as any chemo, but the good news is I am on my way home!!!! Our schedule now is one overnight once a month down at Mayo. What will I do with all my time at home:) Crazy thing this chemo is one that I have had before, now I will be taking it in a pill form.


I am back accessorizing with hats. My head has a landing strip down the middle.


Thanks for all the prayers and support!


Love, Kelly
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38 people hearted this

Comments

25 Comments

kathy haugen
By Kathy and Roger Haugen
That is a good curveball !! So happy you are going home. We continue to hold you close in prayer and in our hearts Kelly!!
Marianne Donner
By Marianne
Yay!! Home is good :). And if the wind there is anything like the wind here... Hold on tight to those hats!!!!

Much love from our family to yours xo
Kaye Matson
By Kaye Matson
Wonderful news!! I would say free time ....a good book...a warm blanket....hot pumpkin spice latte!! Enjoy wonderful fall!!!
Vickie Gutknecht
By Vickie Gutknecht
Wonderful news, being able to be at home more, sleep in own bed, eat good home cooking...will be good for you and family. Prayers continue for Kelly's miracle.
Jen Enstad-Petersen
By Jen Enstad-Petersen
Wahoo!!!
Lori Gelen
By Lori
You are such an inspiration to everyone! My prayers for healing and comfort will continue for you and your family.
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1 person hearted this
Barbara Benson
By Barbara Benson
Glad you can be at home while taking chemo. Thoughts and prayers continue.
Barb
Carol Rogers
By Carol Rogers
I'm happy you can spend more time at home, Kelly! Love you.
Renee Grussing
By Renee Grussing
Well what a nice surprise to be able to go home and be with family! :-) Continued thoughts and prayers are with you all.
Diane Harrison
By Diane Harrison, First Lutheran
I am so glad to hear you can do your treatment from home. Continued prayers for your health. Your spirit and zest are inspirational.