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Make Sure Kelly Is Not Alone This Holiday Season

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Kelly’s Story

Hey Everyone,
Thanks for all the prayers and support you have given me.  Corey, the kids and I can feel your presence with us.  This has been an unexpected journey, a bump in the road, but I am determined to come out on top.  They have labeled it Small Cell Lung Cancer and I have been told, I am a very rare case.  It metastasized almost immediately to the liver and bones.  It is also a disease that is typically not found in people my age who have lead a healthy life.  You can read my background story to get the full scoop.

Love, Kelly
It all seemed to start in November 2012.  My right leg began to hurt.  It lasted about one day and then it went away.  I met with my doctor, they checked for a blood clot and endometriosis.  Both tests came up normal.  Each month the pain returned and seemed to last a little longer.  In March, I ended up in ER with severe pain in my leg and lower back.  They were able to get the pain under control and sent me home with instructions to contact my doctor after a couple of days.  It was during that conversation that I was referred onto a different doctor who immediately scheduled an MRI of the lower back, thinking it was a pinched nerve or herniated disk.  Later that night, I received a call from my doctor with the result.  They did not see what they were looking for, but the radiologist had contacted my doctor with concerns regarding abnormal bone marrow numbers.  Two more MRIs were scheduled for the next week.
Luckily, unluckily, the day of the scheduled MRIs turned out to be a bad pain day for me.  The radiologist came out and asked me about what has been going on and decided to do an MRI and a CT Scan from the chest down.  My day had started out at 8:00 AM and I was finally released at 6:30 PM after undergoing a liver biopsy.  The CT Scan had shown spots in the left lung, liver, pelvis, hips with abnormal bone marrow in femurs, pelvis and lower back.
We waited out the weekend, hoping for an explanation of what we were up against.  Several days passed and I called the radiologist who checked on the status of the results.  Bemidji had forwarded it onto Fargo who diagnosed it as a small cell neuroendocrine tumor originating in the lung.  It was at that point that we were referred to Mayo for further testing.
April 22, 2013, we began our journey at Mayo.  First a MRI of the brain at 8:30 AM, then blood work and finally a PET Scan of the entire body.  Testing finished at 3:30.  We met with our Oncologist at 8:00 AM on Tuesday.  Good news, the brain is clear.  Bad news, the spots that were already identified were confirmed to be small cell lung cancer!  No one can identify how I got it, but the fact of the matter is that I have it.  Now let the battle begin.  I plan on winning!!!

Latest Journal Update

Recovery Time

Well, I am home again after the latest round of 10 days of radiation.  It has taken a pretty big toll on me.  I have completely lost my voice, my throat is swollen to the point it makes eating very difficult and I am basically just worn out.  I bet I could hibernate if I tried hard enough:)  They say the throat stuff is supposed to start getting better in another week.  All I know is it is very difficult to be the MOM in charge when I cannot even get a squeak out.  I got home late Wednesday Night and have laid pretty low since.

Thanks for all the gifts which been showered on me:  the flowers, candy, hats, prayers, etc.  They lift my spirits during the hard days.  

Love, Kelly

PS.  Here I am ringing the bell for the second time!  It may look like the first time I rang the bell.  Its the same bell:)
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Comments

25 Comments

Susan Wild
By Larry and Sue Wild — last edited
You are in out thoughts and prayers. Everyone at First Lutheran is praying for you. Glad you are home again. Get lots of rest.
carol Daly
By Carol Daly
I pray for you every day, Kelly! Your continued smile, positive attitude and strength are such an inspiration for all of us! Get some rest!
Erin Larson
By Erin Larson
Continued prayers Kelly. You continue to be an inspiration with your strength and courage. Many prayers are coming your way now and always! You are always on our minds!
Nancy Hampl
By Nancy Hampl
So glad you are back home. We continue to pray for you! Healing and strength! Your non-verbal mothering skills will be strong and in charge!
Ed Nynas
By Geri and Ed Nynas
Ed and I were just reading your post before we tune in to church on the radio. Perhaps you are doing the same thing. You are in our thoughts and prayers always. We love you.
Dawn Beil
By Dawn Beil
You are such a trooper....continuous prayers for you from the Beils! Hoping you feel better soon!!
Gloria Smart
By Doug and Gloria Smart
Wonder if u could get down home made healthy drinks made in a vitamix - super bullit machine? Doug could if he sipped them slowly. I put in spinach, kale, carrots etc and then a fruit. Actually u can put in anything u like that will go down. I use a base of coconut water or use what u like. Your kids can make these for u. Chocolate in something is great! Doug really likes liquid tomatoe soup and orange surbert. This crazy thing keeps changing my spelling! Otherwise u will start losing weight. U can put protein powders in the drinks too. Hope this is some help. Prayers continue.
Vickie Gutknecht
By Vickie Gutknecht
So good to hear your "journal " voice and to see your smile. Prayers are flying your way for healing of your throat and your miracle.
Carol Rogers
By Carol Rogers, Bemidji
A smile on your face in spite of everything! I love and admire you, Kelly, and pray your side effects will soon be gone.
Marianne Donner
By Marianne
Prayers always!!!