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Kelly’s Story

Hey Everyone,
Thanks for all the prayers and support you have given me.  Corey, the kids and I can feel your presence with us.  This has been an unexpected journey, a bump in the road, but I am determined to come out on top.  They have labeled it Small Cell Lung Cancer and I have been told, I am a very rare case.  It metastasized almost immediately to the liver and bones.  It is also a disease that is typically not found in people my age who have lead a healthy life.  You can read my background story to get the full scoop.

Love, Kelly
It all seemed to start in November 2012.  My right leg began to hurt.  It lasted about one day and then it went away.  I met with my doctor, they checked for a blood clot and endometriosis.  Both tests came up normal.  Each month the pain returned and seemed to last a little longer.  In March, I ended up in ER with severe pain in my leg and lower back.  They were able to get the pain under control and sent me home with instructions to contact my doctor after a couple of days.  It was during that conversation that I was referred onto a different doctor who immediately scheduled an MRI of the lower back, thinking it was a pinched nerve or herniated disk.  Later that night, I received a call from my doctor with the result.  They did not see what they were looking for, but the radiologist had contacted my doctor with concerns regarding abnormal bone marrow numbers.  Two more MRIs were scheduled for the next week.
Luckily, unluckily, the day of the scheduled MRIs turned out to be a bad pain day for me.  The radiologist came out and asked me about what has been going on and decided to do an MRI and a CT Scan from the chest down.  My day had started out at 8:00 AM and I was finally released at 6:30 PM after undergoing a liver biopsy.  The CT Scan had shown spots in the left lung, liver, pelvis, hips with abnormal bone marrow in femurs, pelvis and lower back.
We waited out the weekend, hoping for an explanation of what we were up against.  Several days passed and I called the radiologist who checked on the status of the results.  Bemidji had forwarded it onto Fargo who diagnosed it as a small cell neuroendocrine tumor originating in the lung.  It was at that point that we were referred to Mayo for further testing.
April 22, 2013, we began our journey at Mayo.  First a MRI of the brain at 8:30 AM, then blood work and finally a PET Scan of the entire body.  Testing finished at 3:30.  We met with our Oncologist at 8:00 AM on Tuesday.  Good news, the brain is clear.  Bad news, the spots that were already identified were confirmed to be small cell lung cancer!  No one can identify how I got it, but the fact of the matter is that I have it.  Now let the battle begin.  I plan on winning!!!

Latest Journal Update

A Moment I Was Able to Share

I am feeling a little stronger each day.  My voice is pretty much back to normal.  I still am pretty tired, but am tweaking my pain meds, so that might make a difference.  Tonight, I was able to enjoy a first in my family.  Our oldest daughter Carly went to the winter formal.  The girls had to ask the guys and it was a very nerve racking adventure (for parents and daughter).  

It is hard to believe, but three months have gone by since my seizure.  Tomorrow, my driving restrictions are lifted.  If you hear someone honking for no reason, it may be me celebrating.

Thanks for the prayers,

Love, Kelly
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Comments

46 Comments

Kathy DeKraai
By Kathy DeKraai
I'm glad you are feeling better each day. Deb showed us the pictures of Carlie's dress. She looked so beautiful in it. It is hard to believe that she is so grown up already. Please tell her how pretty she looked in her dress! Take care and lots of love coming your way.
Jessica Chouinard
By Jessica Chouinard
What a beautiful young lady! How can she be so grown up?! It's good to hear you are feeling stronger and were able to enjoy the moment. You're all in my thoughts daily.
Kaye Matson
By Kaye Matson
What a special moment for both of you. I can't believe how grown up and beautiful your daughter has become!!! I suppose her make up was done by her Mary Kay specialist!!!! Haha!!! Thanks for sharing this with us! Love ya girl!! Kaye
Patti VanCamp
By Patti VanCamp
Beautiful picture! Glad to hear all the great news! MAY YOUR HOLIDAY SEASON BE BRIGHT AND VERY BLESSED!
Chelsie Larson
By Chelsie Larson
She is beautiful! Turning into such a beautiful women like her mama!
Beth Mangold
By Beth Mangold — last edited
Carly looks absolutely stunning, Kelly...and her beautiful mom is a treasure to behold in this moment of pride and joy! God's blessings on your newly-granted freedom! I continue to pray for you.

Love, Beth
Katie Weisenberger
By Katie
Wow! Carly looks beautiful and you look so happy. Good news does wonders. Love you!
Kayla Carlson
By Kayla Carlson
Beautiful picture!!! You both look amazing! So proud!
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1 person hearted this
Kelli Fuchs
By Kelli Fuchs
What a great picture of the two of you. So glad you were home and able to share the evening with her!
Tara Molling
By
she looks absolutely gorgeous. what a lucky guy....whomever she asked.

thinking of all of you during the holiday season. WE will venture to north dakota day before xmas.

hope to see you there or in rochester soon!!!! TARA