Keaton Lee's Journal
James Ragan, our friend
Written Feb 18, 2014 3:36pmThis below was written by Keaton's younger brother, my Kaleb. The world lost a shining light last night when the Osteo Monster took another. James and Keaton met in 2007 during their first thoracotomies, and became fast friends, and his family have been such a support and such wonderful friends to us. Some of the most special people I have ever known. My heart breaks with theirs.Once in a lifetime, you might meet someone like no other. Someone who could lead, inspire, and help anyone in need.Someone who was always there no matter what. Someone who, even at a young age, could make a change in this world, and he did.
This someone is now not with us anymore. His name was JamesRagan, and let this name be immortalized in stone. James Ragan, a friend that I will never forget. You were the most inspirationalperson I ever met. You would always take the worst of situations, and turn them into something joyous. From all of your fundraiserevents, to the days of spending them at MD Anderson, it seemed nothing could bring you down. I will never forget the time you had taken us all for a great night on Bourbon street. I will never forget your smile. I will never forget what you did for me and myfamily.
My heart goes out to the Ragan's today. Mecklin Ragan,your brother was the most amazing person I will ever know. He was like no other, and words can not express how amazing you and your family are. You and your family's support upon this community has truly changed the world.
Thank you for helping my brother throughout his treatment. You were a spark that helped him through hard times. I can only imagine you are now with him, sharing stories and having a good time. Perhaps you can teach him a little golf.
Osteosarcoma, a disease that has claimed too many lives. The disease that claimed my brother, KeatonLee, you, and too many countless other great lives. You have proven to me that anything is possible, and throughout my educationand career in research, I will never forget the name that has claimed too many. Perhaps one day I can take your drive and inspiration, and help end this terrible disease.
So here's to you James Ragan, A hero, A leader, My friend, your legacy, never forgotten. I don't like endings, but you have spread your love and inspiration on so many others, that I see new beginnings everywhere.
2006 to 2014, a long battle to fight. I'll miss you greatly James. You now rest peacefully, and your legacy, spread throughout the universe.
Written Dec 24, 2013 10:03amThe Ghost of Christmas PastCame visiting last nightWith memories of malls aglowIn foreign landsAnd curly headed Christ childSanto Niño statuesReflect my sons angelic faceAnd golden curlsAnd pushing him alongThreading through the throngOf dark haired doe eyed shoppersWho turn to stare at Santo NiñoSitting wheelchair boundWith chemo curls re grownFrom toxic burn offAnd chubby cheeksInduced by massivesteroid dosesBut that is my realityThey do not knowThe bitter factsThey only see the miracleOf Santo NiñoCome to lifeWhispering as we pass byPointing...smilingAnd Santo Niño smilesAnd nods to themUnfailingly politeHis face so whiteAmong the darker crowdThey laugh and reach outTo touch him as he passesAll unawareThat every jostleOf his chairProduces instant agonyI see him grimaceBut he holds his frozen smileSet in placeOn his youngdeterminedFaceSanto NiñoBears his crossThe children laughAnd play around himWhile he faces hisLast ChristmasFar awayFrom Home
Letter to Roger and Dawn Kenneavey
Written Dec 10, 2013 10:08pmDear Roger and Dawn
4 years ago...
Or 4 month...or 4 days...it all feels the same. Does not seem possible that it has been 4 years since I heard that heartbreaking news that Dan was gone. And then went over to Keaton, sitting in Dan's recliner, and held him as we cried for the loss of such a special young man. Sometimes it all seems like a bad dream...sometimes this life seems like a bad dream.
So proud of you guys, for the tenacity and drive you have shown, in accomplishing such a huge achievement. Not only a honor for your son, but such a need fulfilled for so many.
I recognize this building..it is such a gorgeous place! I wish I could be there Saturday, but don't think I can make it then. But I definitely want to visit and see it and you guys, soon.
Keeping you both in my thoughts and prayers. These anniversary dates are never easy. But your great news today has to have been good for you. And will be for so many in the future. Congratulations.
Karen LeeDan Kenneavey from Wisconsin, and his mom, Dawn, in the background, with Keaton and me at a mall in the Philippines. Dan did the same experimental therapy as Keaton, attempting to find something to stem the Osteosarcoma monster that attacked him so relentlessly. Such an outstanding young man. He died in a hospital in the Philippines, 4 years ago. His parents have started a foundation in his name to help provide lodging while in Houston for medical treatment, for young adults over 18, no longer eligible for children's aid, yet still so much need. Dan's House of Hope will do great things.
BREAKING NEWS!!!! The DHOH mission takes a giant step forward with today's acquisition of a new property. The 5700 square foot B&B type facility is located in Houston's Museum District, minutes from the front doors of most of the TX Medical Center hospitals. It will not only provide ample space for events, gatherings and programming for visiting and local Houstonian AYAs, but housing for 4 to 6 out of town young adult cancer patients and caregivers. Tomorrow is the 4 year anniversary of Dan's passing - today is the next step in his dream of building a sense of community for young adults becoming reality.