Keaton Lee's Journal
Letter to Roger and Dawn Kenneavey
Written Dec 10, 2013 10:08pmDear Roger and Dawn
4 years ago...
Or 4 month...or 4 days...it all feels the same. Does not seem possible that it has been 4 years since I heard that heartbreaking news that Dan was gone. And then went over to Keaton, sitting in Dan's recliner, and held him as we cried for the loss of such a special young man. Sometimes it all seems like a bad dream...sometimes this life seems like a bad dream.
So proud of you guys, for the tenacity and drive you have shown, in accomplishing such a huge achievement. Not only a honor for your son, but such a need fulfilled for so many.
I recognize this building..it is such a gorgeous place! I wish I could be there Saturday, but don't think I can make it then. But I definitely want to visit and see it and you guys, soon.
Keeping you both in my thoughts and prayers. These anniversary dates are never easy. But your great news today has to have been good for you. And will be for so many in the future. Congratulations.
Karen LeeDan Kenneavey from Wisconsin, and his mom, Dawn, in the background, with Keaton and me at a mall in the Philippines. Dan did the same experimental therapy as Keaton, attempting to find something to stem the Osteosarcoma monster that attacked him so relentlessly. Such an outstanding young man. He died in a hospital in the Philippines, 4 years ago. His parents have started a foundation in his name to help provide lodging while in Houston for medical treatment, for young adults over 18, no longer eligible for children's aid, yet still so much need. Dan's House of Hope will do great things.
BREAKING NEWS!!!! The DHOH mission takes a giant step forward with today's acquisition of a new property. The 5700 square foot B&B type facility is located in Houston's Museum District, minutes from the front doors of most of the TX Medical Center hospitals. It will not only provide ample space for events, gatherings and programming for visiting and local Houstonian AYAs, but housing for 4 to 6 out of town young adult cancer patients and caregivers. Tomorrow is the 4 year anniversary of Dan's passing - today is the next step in his dream of building a sense of community for young adults becoming reality.
Nearing end of September
Written Sep 27, 2013 9:04amWell, getting close to the end of September, childhood cancer awareness month . Has anyone seen any gold ribbons up and decorating the stores in gold to remember our kids? To bring attention to the fact that so little funding is available for the research so desperately needed to save our precious children who are being attacked and destroyed by childhood cancers? I haven't.
The following list is just some of the kids I know who died from Osteosarcoma cancer alone since my son and I were thrown into this agonizing world of kids cancer. And I know more who died from other kids cancers.
And the world is already turning pink while this list grows and grows and grows.
Baby Faith Mwangi
Drew Thomas Martin
Emily Del Vecchio
Madeline Parker Higgins
Mikayla Rose Adams
Nathan Noel Burgess
Sarah Maria Brauser Hays
Seth H. Brooks
September should be gold..the color for Childhood Cancer
Written Sep 3, 2013 3:09pmSeptember is Childhood Cancer Awareness Month but if I didn't just tell you that - would you know? There is a movement within a Childhood Cancer support group I am part of. We will be sending hundreds of Yellow Flood Lights to the White House in the hopes that President Obama will be encouraged to show his visual support for Childhood Cancer month by lighting up the White House for one week in September (22-30). The 5 step procesd is simple:
1. Visit Home Depot and purchase one or one case of Philips 100-Watt Yellow BR38 Flood Light Bulb Info on the single light Philips BR38 100-Watt Yellow Flood Light Bulb Model # 387662 Store SKU # 262111 The online cost of this single bulb is $7.97 Info on the 6-Pack Case is Model # 387662 The online cost of this case product is $38.42/case. 2. Go to your local post office and pick up one of their FREE mailing boxes that will fit the light package and packing supplies (bubble wrap) to go around the lights so that they do not break in postage delivery. 3. Bring the product and box home and securely wrap. 4. Transcribe the letter below from you and include in the mailing box. 5. Mail your box to President Obama by September 7, 2013. The mailing address is President Barack Obama The White House 1600 Pennsylvania Avenue NW Washington, DC 20500 Proposed Letter to the President (Feel free to edit this letter to suit your particular story) (Name) (Address) (City, State, Zip) President Barack H. Obama The White House 1600 Pennsylvania Avenue NW Washington, DC 20500 Dear President Obama: As a childhood cancer advocate, I feel compelled to once again ask for your visible support of Childhood Cancer Awareness Month. As a parent, I thank you for your recent proclamation designating September as “Childhood Cancer Awareness Month”. This document will be used by many pediatric cancer organizations during the month of September in an effort to add credence to the united messages which we will be sending during September and beyond. Unfortunately, we are painfully aware that today’s society takes little time to read lengthy messages posted in our newspapers and via social networking site. We do know that people are compelled to participate in campaigns when they see symbolic endorsements of those campaigns. For that reason, I am sending to you this one case of yellow flood lights with the hope that you and your maintenance staff might consider installing these lights for just one week (September 22 – 30), prior to your staff’s formal lighting of the White House pink on October 1 in recognition of Breast Cancer Awareness Month. As a woman, I appreciate the tremendous measures that are taken to bring awareness and funding to the issue of Breast Cancer. This campaign has been hugely successful for many, many years and has done great things to help in raising awareness and funding for that disease. But, as a parent, I am also concerned with the issue of childhood cancer and how these rarest forms of cancer are taking a toll on our children; our nation’s most precious resource! You are the father of two amazing young women. I know that you and their mother would go to the end of the world and back again to protect them from any harm that may come their way. At the present time, Cancer is the worst of all childhood opponents and we parents cannot protect our children from these diseases until the causes and the cures are found! Parent to parent, I am calling on you NOW to help us in our effort to raise even greater awareness and funding for childhood cancer. Won’t you accept these lights today and ask your White House staff to install them for at least one week this month in a united effort to pay tribute to those children and families who are currently battling these dreadful diseases and to honor the memory of those children who have lost their lives to childhood cancer? My sincere thanks for your consideration of support for the children of the United States of America! (sign name)