At the risk of jinxing ourselves, we are happy to report that KC is doing very well these days. It seems that the new combination of meds are just the ticket. We have an appointment scheduled with a neuro-optholomologist this summer and are going to again persue going to a developmental pediatrician. Karen is quite sure that the odd eye deviations (which are much better with the aforementioned med combo), are nystagmus. Nystagmus is a neurologically related problem that is not seizure and we want to be sure that we don't need to be addressing this specific issue in any way. The developmental pediatrician will look at the relationship between KC's neurological problems, medications, and behavior issues to try to determine any possible linkage and how to best address these concerns.
In the mean time KC is loving the nice weather and has enjoyed three trips to the Shedd Aquarium already this year. He also got to see Elmo Live with Mommy, Pop Pop, Lisa, and Kaylee. Karen and Gran are spending way too much time choosing just the right outdoor playset. We are trying to choose one that will help KC's brain develop the most
neuropathways, be very safe for Mr. Falls A Lot, and will be a playset that he won't outgrow too quickly. If anyone has a lead on someone that can build the thing once we get it please please share.
