My Story

My name is Kaylee Noelle Krause.

I was born May 4, 2004.

I was diagnosed with a rare genetic metabolic disorder called Hurler's Syndrome. On November 4, 2005~ I received an unrelated cord-blood transplant at Duke.

On June 6, 2006 ~ I left my mommy's arms and went to be with Jesus. I am now Healed. I am finally able to be a healthy, happy, two year old little girl!

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Saturday, June 6, 2009 5:04 AM, CDT


Three years ago today I held my baby for the last time here on earth.  It was the hardest thing I ever had to do...  

I miss her so much.  She is still so much alive in my heart, I know she is alive in Heaven... and I wait for the day that I get the honor.. the privledge... to see her beautiful little face again... to hold her in my arms... to kiss her sweet cheeks.... to tell her that I love her.

It is strange.  As much as I count the days that she has been gone, with every day that passes I am one day closer to seeing her again....  she is in my past but she is also in my future.

I am so thankful that I know that truth...

Kaylee girl, Mommy loves you .... I miss you beyond words.  My thoughts always lead me back to you.  When you moved to Heaven, a part of my heart went with you. You are and will always be a part of me.

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E-MAIL AUTHOR

kayleespromise@msn.com

HOSPITAL INFORMATION

Duke Pediatric Bone Marrow Transplant Program
2400 Pratt St.
Suite 1400
Durham, NC 27710
United States