My Story

My niece, Kaya Kavadas was diagnosed with a rare form of Leukemia called T-Cell Acute Lymphoblastic Leukemia. She receives her treatments/medical care at the MeritCare hospital and Roger Maris Cancer Center in Fargo, ND with Dr. Nathan Kobrinsky & staff.

All of her many family & friends are pulling for her having high hopes that she will be strong & pull through with God's help.



Kaya started talking out of the side of her mouth about a month ago (middle of January). We also noticed that she couldn't close her right eye all the way. The doctors told us she had Bells Palsy and it would go away in 10 days to 7 months.

Then her arm went numb and Altru had an MRI done on Kaya. It was normal and she was sent home, still being unknown as to what was wrong. Her arm started feeling better, but than she started having problems with her leg. She was unable to walk very far without limping/dragging her leg so we brought her back in to the ER.

As time went by Kaya's face started getting puffy, she started not being able to eat and could only drink through a straw. She also seemed to have a bad cold that just wouldn't go away. She went back to the doctor again and again and again - 1 said she had Bells Palsey, another a virus, and ENT that said she had the mumps and would be okay in a week to 10 days. The neurologist saw her and said "this is not the same little girl - there is something seriously wrong here!" He had us go to Altru Hospital right away. Altru did a spinal tap that came back normal however the x-ray showed a large mass in her chest.

Kaya was transported to MeritCare by ambulance last night (feb. 15) at about 9-10 at night. She was sedated and is now on a breathing tube/life support. She was found to have a large tumor over her heart, a swollen liver and spleen, with her kidneys failing. Chemo treatments have already begun, and we are hopeful that she will be off oxygen by Sun-Mon, depending on when and how much the tumor on her heart goes down so she can breath. Doctors are also hopeful that she will be in remission by the middle of March. We have been given a 70% chance of recovery.

All of Kaya's supporters appreciate and ask for your prayers at this very difficult time.

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Krissy Kavadas posted a new journal entry.

Kaya had been taking medications for her focal epilepsy for a good two years. Recently, she was taken off the medications because she was doing so well and all of her ... Read more

Krissy Kavadas posted a new journal entry.

Kaya had been taking medications for her focal epilepsy for a good two years. Recently, she was taken off the medications because she was doing so well and all of her ... Read more

Krissy Kavadas posted a new journal entry.

I decided just to take a look at Kaya's Caringbridge this evening and I ended up going back and reading every journal entry! Wow does a person forget a lot of stuff ... Read more

Krissy Kavadas posted a new journal entry.

Being over a year since I have written on here obviously lots has changed with Kaya. All good things though. Kaya continues to be on seizure medications but hasn't had a ... Read more

Krissy Kavadas posted a new journal entry.

Kaya's spinal tap was clear! yay, we expected it to be but its so nice to know for sure. Kaya has been doing great. No seizures since being put on medication. The only ... Read more

Krissy Kavadas posted a new journal entry.

so Kaya was all set to get her spinal yesterday afternoon, until we realized that we let her eat like half an orange. Since you can not eat or drink anything before being ... Read more

Krissy Kavadas posted a new journal entry.

very happy to report that Kaya's MRI was normal! We are still awaiting the spinal tap after those results we will be ready to head outta here! We're pretty sure the spinal ... Read more

Krissy Kavadas posted a new journal entry.

Happy to report that Kaya hasn't had a seizure since she received medicine around noon in the ER. It was a long day of arts and crafts, hangman, and cartoons in the ... Read more

Krissy Kavadas posted a new journal entry.

Kaya had a sleep deprived EEG on monday. We weren't going to get the results for about a week but this morning Kaya had four what we call spells while getting ready for ... Read more

Krissy Kavadas posted a new journal entry.

A few things I felt to share tonight. First off Kaya is still doing  well. It was determined that Kaya will keep her port in for about another year. This is due to the ... Read more

Krissy Kavadas posted a new journal entry.

Kaya has been doing great! She had her end of chemo party at the end of july. The party was put on by the staff at the Roger Marris cancer center in Fargo. it was in the ... Read more

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