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Katie’s Story

Welcome to our CaringBridge site. We've created it to keep friends and family updated. We appreciate your support and words of hope and encouragement during this time when it matters most.

Latest Journal Update

Video updates

Katie is doing great. She is seizure free on one medication (Keppra). Katie was diagnosed with Autism in July (a diagnosis we sought) and it helped get us more ABA, which has been beneficial. Katie is energetic and active, but well behaved for her cognitive level.


o Turning lights on and off entering and leaving a room

o opening doors and items that have a safety feature on them

o choosing what she wants to wear when given an option

o Flying through IPAD. She can now navigate the different windows of the IPAD and can choose her own videos to watch (of which she has several to choose from now)

o mimicking motions for songs like things like wheels on the bus and twinkle twinkle.

o waving goodbye (but this is still difficult for her)

o Katie is doing fantastic on her communication device and using it to communicate. She can pick up people and items very quickly once shown. She asks for TV shows, different foods, and we are working on difference between need and want.

- asking to go to sleep at night

- picking up new people (like her ABA therapist- had with two times shown)

- asking for different foods, drinks, TV shows

- manners such as saying hello, how are you, thank you, and goodbye (she had please down right away) she mostly does these when prompted, but still, she knows where and how to ask.

- ‘Yes’ No, although she understands yes more than No. (We don’t use that word much- usually stop, or don’t do that’)

o bringing the talker with her from room to room (realizing it is her voice)

o understanding patterning

o playing better with others, not quite grasped sharing yet, but she is watching kids and better about waiting and turn taking. slowly she is choosing activities that are intended for multiple children than solo activities. So slowly she is tolerating her peers in her environment and slowly starting to interact with the,

o will color/draw lines when asked and not eating the crayons anymore

o sitting to watch entire TV episodes, and sometimes another w/o getting up to find another activity

o asking for help on talker or her sign language when she needs our help


Physically- Katie is can walk/run and loved to jump on her trampoline. Her agility and dexterity are better, but she still has left side weakness and falls sometimes She goes up and down stairs without holding the handrail and sometimes holding objects. She can unzip her jacket and use her left hand to stabilize something to open a zipper to get something inside she wants. She is in the undress stage- taking off her clothes to include pants, shirt and diapers (if she does not have a onesie on backwards). She can get in and out of her own bed


So hard to believe she starts Kindergarten next year!

 I have taken lots of viedo to show you all the great things she is doing now. One thing I need to get is the 'Head, shoulders, knees, and toes song" Katie knows all these body parts now :)

The videos of her picking letters was last November (yes I am late) the other viedos in last two months. 

Still no seizures on meds!