Hi everyone,
    Sorry so long to update.  Katie has good and bad days.  Still with tingling and numbness to her right arm and hand.  Up at night with twitiching and grunting with spasms.  Last night was bad and some days are long just not getting enough sleep.  She still cant handle long days of too much activity.  She will complain of headache or feeling funny in her head or body.  We see another new neurologist on July 10th.  The chief at Childrens memorial cause no one at university of chicago with this background. No more loss of bladder control for last 2-3 weeks and no more rubbing of hand repetitively.  So we still think it is intercrainal pressure that goes up and down.  Neurosurgeon wants to do a lumbar puncture to check pressure in her head but we are going to wait for that test cause it requires sedation ,iv's and maybe over night.  She graduates from preschool tomorrow and at least we will have a break for the summer.  Keep her in her prayers, she always still needs them and Katies great grandmother Helen Kawa died last week and she was Katies number one prayer person.  She is going to be greatly missed. All our Love Darlene