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Mi historia

F.R.O.G  Fully Rely On GOD
Blessed Be The Name of The LORD!
I am Katie Grace I am 10 and I have Pulmonary Hypertension a rare and terminal illness. But I have Faith that God will see me through. Thank you for being here to visit me ;)


 I have now started the 4th grade. Pulmonary Hypertension has given me a bumpy road to go down but it does not stop me. I am always glad to share a great story. I love being a girl and doing what girls do.
It is my dream to be a veterinarian when I grow up but I have made a promise to never move away from mommy and daddy. I  love my big sister Savanha and love to hang out with her and her friends. I have the Lord in my heart and enjoy Christian music. I also enjoy doing things for "PH awareness" and "
Organs are Us"

Mom: My favorite quote from Katie Grace is when she was asked when she will get her trans plant and she said " I do this for my friends that have already had theirs there will be a cure for PH before I get mine"
Her long brown hair and big blue eyes are a compliment to her award winning smile.
Thank you for visiting her here.

Visit www.PHAssociation.org to learn more about PH

Katie Grace



Missed PH Awareness :(

Dec 13, 2012 6:08pm

November was National PH Awareness month... It was a VERY busy month for us. The end of October brought grams to attend the "Katie's Dream Event".. It was a wonderful time spent with family and friends giving awareness for both PH and Organ transplant needs..
I had several doctors visits as I have been experiencing more S.O.B and chest pains. Part due to decrease in lung function and part to anxiety.
I have been doing a lot of baking with my family and friends... Preparing for Christmas.
My Event was great and raised a lot of money... The first 2 things on my needs list is an oxygen concentrator and pediatric scooter.
We are attaching information abut PH. This year we have lost 3 PHriends to PH we need a cure...
 *Increased hospitalization and death rates due to pulmonary hypertension may reflect greater physician awareness of the disease rather than a growing epidemic of pulmonary hypertension.
Pulmonary Hypertension Facts
  • Pulmonary hypertension occurs when the blood pressure in the pulmonary arteries, which carry oxygen and blood from the heart to the lungs, is much higher than normal.
  • Pulmonary hypertension usually occurs along with another disease or condition, such as pregnancy, heart and blood vessel diseases, lung diseases, liver diseases, sleep apnea, connective tissue diseases such as lupus and scleroderma, thyroid diseases, HIV infection, or use of certain diet medicines or illicit drugs.
  • In 2002, pulmonary hypertension led to 15,668 deaths and 260,000 hospital visits in the United States.1
  • Pulmonary hypertension can affect men and women of all ages and racial/ethnic groups. However, the majority of people who have this condition are older women.
  • Between 2000 and 2002, 807,000 patients were hospitalized with pulmonary hypertension. Of those hospitalized, 61% were women and 66% were aged 65 or older.1
  • Prior to 1995, people with pulmonary hypertension lived on average less than 3 years after diagnosis. Now, new treatments have improved survival rates and quality of life for those living with this condition.

Symptoms of pulmonary hypertension include—

  • Frequent tiredness.
  • Shortness of breath.
  • Chest pain.
  • Irregular heartbeat.
  • Fainting.
  • Swollen ankles and legs.
  • Fluid in the abdomen.

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I am so thankful that you are here to visit me ;) To help PH email PH association . org  or You can donate to my medical cost COTAforkatiegraceg.com


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Healthcare Facility

Lucile Salter Packard Children's Hospital at Stanford
725 Welch Road
Palo Alto, CA 94304-1601
United States