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Missed PH Awareness :(

November was National PH Awareness month... It was a VERY busy month for us. The end of October brought grams to attend the "Katie's Dream Event".. It was a wonderful time spent with family and friends giving awareness for both PH and Organ transplant needs..
I had several doctors visits as I have been experiencing more S.O.B and chest pains. Part due to decrease in lung function and part to anxiety.
I have been doing a lot of baking with my family and friends... Preparing for Christmas.
My Event was great and raised a lot of money... The first 2 things on my needs list is an oxygen concentrator and pediatric scooter.
We are attaching information abut PH. This year we have lost 3 PHriends to PH we need a cure...
 *Increased hospitalization and death rates due to
pulmonary hypertension may reflect greater physician awareness of the
disease rather than a growing epidemic of pulmonary hypertension.
Pulmonary Hypertension Facts
  • Pulmonary hypertension occurs when the blood
    pressure in the pulmonary arteries, which carry oxygen and blood from
    the heart to the lungs, is much higher than normal.
  • Pulmonary hypertension usually occurs along
    with another disease or condition, such as pregnancy, heart and blood
    vessel diseases, lung diseases, liver diseases, sleep apnea,
    connective tissue diseases such as lupus and scleroderma, thyroid
    diseases, HIV infection, or use of certain diet medicines or illicit
  • In 2002, pulmonary hypertension led to 15,668 deaths and 260,000 hospital visits in the United States.1
  • Pulmonary hypertension can affect men and
    women of all ages and racial/ethnic groups. However, the majority of
    people who have this condition are older women.
  • Between 2000 and 2002, 807,000 patients were
    hospitalized with pulmonary hypertension. Of those hospitalized, 61%
    were women and 66% were aged 65 or older.1
  • Prior to 1995, people with pulmonary
    hypertension lived on average less than 3 years after diagnosis. Now,
    new treatments have improved survival rates and quality of life for
    those living with this condition.

Symptoms of pulmonary hypertension include—

  • Frequent tiredness.
  • Shortness of breath.
  • Chest pain.
  • Irregular heartbeat.
  • Fainting.
  • Swollen ankles and legs.
  • Fluid in the abdomen.