My Story

F.R.O.G  Fully Rely On GOD
Blessed Be The Name of The LORD!
I am Katie Grace I am 10 and I have Pulmonary Hypertension a rare and terminal illness. But I have Faith that God will see me through. Thank you for being here to visit me ;)

 

 I have now started the 4th grade. Pulmonary Hypertension has given me a bumpy road to go down but it does not stop me. I am always glad to share a great story. I love being a girl and doing what girls do.
It is my dream to be a veterinarian when I grow up but I have made a promise to never move away from mommy and daddy. I  love my big sister Savanha and love to hang out with her and her friends. I have the Lord in my heart and enjoy Christian music. I also enjoy doing things for "PH awareness" and "
Organs are Us"

Mom: My favorite quote from Katie Grace is when she was asked when she will get her trans plant and she said " I do this for my friends that have already had theirs there will be a cure for PH before I get mine"
Her long brown hair and big blue eyes are a compliment to her award winning smile.
Thank you for visiting her here.

Visit www.PHAssociation.org to learn more about PH

Katie Grace

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Kathy Groebner posted a new journal entry.

Summer has now come to an end... We had a great time at the Clayton Derby days and mom hads been busy unpacking.I started school... Mrs Blazers 3rd grd class. we have been ... Read more

Kathy Groebner posted a new journal entry.

So many things have changed for us this year. Katie Grace is now on o2, (Supposed to be 24/7) add new meds, she has passed and is now going to 3rd grd (there has been no ... Read more

Kathy Groebner posted a new journal entry.

Hello all, As you can see Katie Grace is learning how to use her caringbridge on her own. She has been not feeling so well so they have decided it is best for her to only ... Read more

Kathy Groebner posted a new journal entry.

good  stof  to  sind . But   sorry  for   the   people   that   are   not   doing   bad. Read more

Kathy Groebner posted a new journal entry.

So this first of the year has brought some challenges. Yesterday we lost a dear PHriend, we all have had colds, and SSI/Medical has denied her on account of they say John ... Read more

Kathy Groebner posted a new journal entry.

Well time sure flies when you are having fun.Can you believe that it is 2011?? I am sure that things can only get better from here.We ended our year by visiting Family and ... Read more

Kathy Groebner posted a new journal entry.

YA HOO we did it November 2nd was officialy Clayton City Pulmonary Hypertension Awareness Month.Back in the race on Sunday the 7th.Still doing Pucker Up 4 PH Read more

Kathy Groebner posted a new journal entry.

Nov 2nd Clayton will be declaring November as Clayton PH Awareness Month. Though the paper says it was for my family it is also in honor of the daughter of Mrs. Charyl ... Read more

Kathy Groebner posted a new journal entry.

So it  is that spooky time of year again. I have been doing well and starting to sleep all night. That make's my mom so happy. The girl in my pic is Megan we have been in ... Read more

Kathy Groebner posted a new journal entry.

I was sad because this was our last of the summer weekend with friends camping and the past 2 yrs we have not done it :( But this weekend rocked, campfire and marshmallows ... Read more

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