I think I am finally figuring out a pattern to her episodes. At least the last couple times when things start going bad it is because of her breathing getting worse not because she is sick or getting sick. It gets so labored and her breath holding/hyperventilating also gets worse to the point she ends up having apnea spells. She starts with those and they progress to get worse, last longer, until it triggers a seizure. So she will start out in an apnea spell and end it with a seizure. The last 2 times we have had to use the Adivan to stop them. She will then sleep for a couple days. Remain sleepy for a couple more days. Have a couple good days then the breathing starts getting bad again and the cycle starts all over again. If I am right on this I feel bad for her because she shouldn’t have to be drugged so much. She is in the middle of this cycle right now. Yesterday morning she had an apnea spell and we just watched her close. This morning she had another one and her breathing has remained bad to the point that this afternoon she ended up going into an apnea spell ending in a seizure. Her breathing remains very bad. She’s very twitchy, clammy and seems kind of ‘out of it’ but she gets that way when she has to work so hard to breath. So that also means she hasn’t eaten by mouth today. I am just too scared she will choke.  We will see how the day ends.