This site has been created to keep friends and family updated about Katelyn. She was diagnosed with a brain tumor and seizures, in the spring of 2003. She had surgery to remove the tumor, but it grew back in 2005 and was removed through a 2nd surgery. In Nov. 2012 she had surgery again to remove 3 more tumors. One tumor remains, with a portion that is inoperable. She is now being cared for by an oncologist.
Be sure to read the latest in the journal, view the photos, and drop us a line in the guestbook.
In the winter of 2003, Katelyn age 5, started having complex parital seizures and was later diagnosed with a brain tumor. The tumor was located in the right temporal lobe. She underwent a tumor resection on June 26, 2003-the tumor was successfully removed and was identified as a benign Pylocytic Astrocytoma. Prior to surgery, she endured countless seizures and spent many days on the pediatric epilepsy unit at Children's Hospital. Following her surgery, she spent an amazing total of only 3 days in the hospital prior to going home. Her spirit, strength and bravery were inspiring!
Once home, she recovered quickly and lived a seizure free life for 15 months. She attended kindergarten and played summer soccer. In September of 2004, she once again started having some seizures. The MRI was questionable on tumor regrowth, but upon repeating the MRI 3 months later, it was determined to be scar tissue.
Since then, her seizures have continued in frequency. Her most recent MRI is showing a "nodule" which her physicians feel is tumor regrowth. Katelyn is now almost 7 years old. So, over 2 years after this all began, we are unfortunately, back to where we started.
On November 23, 2005 Katelyn underwent her second surgery to remove the tumor regrowth. She underwent many scans, EEGs and special tests prior to surgery. She spent 5 days in the hospital and is home now, recovering. The pathology report confirmed the recurrence of the Pylocytic Astrocytoma. The surgery went well and she had another amazing recovery!
We did not get the best news back from the April MRI. Unfortunately, there is another "spot" enhancing on the latest films. It is too soon to tell if the tumor is growing back for a 3rd time, or if it is just residual scar tissue from her last surgery. We have another MRI scheduled for July 11, 2006. Until then, we watch, wait and pray!
Scans in '08, '09 and '10 were stable! She is still taking seizure meds., but she can now go 2 years between MRI's. The next one is due in the Fall of 2012.
Katelyn started having some seizures in July of 2012. She had an MRI on Sept. 11 and she has 3 brain tumors. There are 2 new small finger-like tumors growing, along with the original tumor growing back for a 3rd time. Our hearts are so heavy! After 7 years of being tumor free, her journey is starting all over again. We appreciate your words of encouragement and many prayers!
Katelyn endured her 3rd brain surgery on Nov. 14, 2012. The surgeon was able to completely remove the 2 new smaller tumors, but unfortunately, her larger tumor is too close to a major artery to be completely removed. Katelyn's care has now been turned over to an oncologist. The plan is to do a follow-up MRI in late Feb. of 2013. If the tumor is stable, then we will repeat the MRI in 3-6 months. If the tumor is growing, Katelyn will have to begin chemotherapy.
Through this website, we hope to share Katelyn's new journey and awesome spirit for life with you all...