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My Story

Welcome to my CaringBridge site! With encouragment from my friends, I've created this site to keep friends and family updated about my lupus.

Here I'll share how I'm doing and my latest health updates. Feel free to write notes for me or my family. Thank you for your everlasting support!

~Kg

After several months of fighting severe pain and arthritis, a dear relative got me an appointment with a rheumatologist at the Mayo Clinic. The same day - Oct. 31, 2008 - I was diagnosed with Systemic lupus erythematosus (SLE).

Through exceptional care at the Mayo Clinic, I've been able to overcome immobilizing arthritis, histoplasmosis (a disease caused by the fungus histoplasma capsulatum), pulmonary embolisms (blood clots) in my leg and lungs as well as pericarditis (inflammation around the heart). I believe that's all of it :)

As there is no cure for lupus, I'll continue to face ups and downs with the disease. Anyone fighting lupus will tell you a strong support system is the key to coping with such a frustrating disease. I have been blessed with remarkable people in my life who've made dealing with all of it less difficult. I can't thank everyone enough for all your support, prayers and thoughts.

Love you all,
Karin

Journal

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Another day in a life with lupus

Jan 15, 2013 8:27pm

Hey, I thought I’d give an update since I’ve gotten a lot of messages, which is much appreciated! Dave and I went to the ER last night because I had intense chest pain and was having trouble breathing for the past few days. The docs found inflammation and fluid in my heart and lungs – caused by a lupus flare (They don’t know what triggers flares. Lupus does whatever it wants, whenever, which is always fun...) I’ll see a cardiologist Friday to make sure the inflammation/fluid isn’t causing organ damage.

The docs gave me drugs, and my pain has subsided considerably. I feel a LOT better, just tired from being at the ER for 7 hours until 1 a.m.  – lots of angry bird levels. All in all, just another lupus hiccup J

Thanks for all your support and prayers!
KG



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Healthcare Facility

Mayo Clinic
200 First St. S.W.
Rochester, MN 55905
United States