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My Story

On April 7,2011 what seemed to be another normal day took a turn for the worst. Kacie was brought to the Dr. for frequent headaches,vomiting and double vision. An MRI was ordered and to our suprise they found a large orange sized tumor on the left side of her brain. So our journey countinues......

Kacie turned 15 on April 24th. She is the 2nd oldest of five kids. Kacie is in 9th grade and attends New York Mills school. She loves hanging out with friends and loves playing Volleyball, cheerleading, softball and speech. She is extremely creative and has plans to become an art teacher. Until recently she loved to read. After getting double vision, she has not really been able to. Starting in the beginning January 2011, Kacie started having a few headaches occasionally. By the middle of March 2011, she started to get some stomach aches along with her headaches. We took her to the dr. and it was found to be caused by stress. By the beginning of April 2011, she was experiencing terrible headaches,nausea,double vision,weakness,some numbness,and very tired all the time. We knew something was definitely wrong. Took her back to the dr. and an MRI was ordered. We were told it was to rule out any yucky stuff. 2 days later she had an MRI at 3:00pm. It took just under an hour. About another hour later, sitting down to eat supper with the family we received a call that changed our lives. It was the on call dr. letting us know that Kacie has a brain tumor. The dr. counseled with the Fargo Neurosurgeon, and Fargo counseled with UofM. They decided it was an emergency situation and that we needed to pack our stuff and get on the road to the University Minnesota Medical Center in Minneapolis MN. It would be a 3hour trip for us so we needed to kick it in gear. The roughest thing was telling Kacie, a sweet energetic 12 year old what was happening and why we needed to leave. She took it very hard, as did we all. The only thing we could think of, was being strong for Kacie,supporting her and not letting our emotions take over. We did not want to scare her. We left for Minneapolis and 3hours later she was admitted into the hospital. She has been through lots and lots of testing and scans.She's been poked and proded on a constant basis. The results were a large orange sized tumor on the left side of her brain. She has now gone through four brain surgeries to remove tumor. On June 17th she started her 6 week run of radiation treatments. After different Pathologies from different facilities, it is known to be a malignant Extra Skeletal Myxoid Chondrosarcoma. Kacie been handeling this the best she can. The Neurosurgeons and Oncologists are great about letting Kac have a voice. She is allowed to make some choices on her own, to voice what she wants and how she feels about everything. Boy, let me tell you she DOES. It's sometimes hard for us to realize that she is able to do this. But its important to keep her very involved for the sake of her condition and recovery. The hardest thing in the world has been to watch her go through this. Keeping her comfortable and as stress free as possible is the goal. Our family asks that you keep her in your thoughts and prayers throughout this extremely difficult time. We will continue to keep you updated when we can. Thank you all for your thoughts, prayers,gifts and cards. She appreciates it and loves knowing that people really do Love her so much and care about her. Thank you all!!! 


Michelle Henderson posted a new journal entry, "ER update".

Just a little catch up. About a week ago Kacie thought that her shunt may have popped up out of her abdomen muscle. But she didn't have any pain and had been doing fine. ... Read more

Margaret Vela signed Kacie's Guestbook.

Dear Henderson/Pikula Family,I hope you have had a Merry Christmas, especially Kacie.  I pray everything is going well with her.  I pray for a happy and healthy New ... Read more

Julie Fletcher signed Kacie's Guestbook.

Thank you for the update once again.  I have been thinking of you guys and continue to hope all is well each and every day in my prayers for Kacie.  I am ... Read more

britta Fleeson signed Kacie's Guestbook.

Praying for you all as always. I can not believe that kids would say stuff like that, well actually i can. I hope you made their parents aware of it. That is completely ... Read more

Kristine Coffey signed Kacie's Guestbook.

Kacie....you are always on our minds and wish nothing but the best for you during this journey. Something my Mom always told me and I have to remind myself is God never ... Read more

Connie Gray signed Kacie's Guestbook.

Just want you to know you`re in our thoughts and prayers.I hope you`re enjoying school this year. Read more

Trudy Irons signed Kacie's Guestbook.

Thank you for the update.  We continue to pray for Kacie.  She is such a brave young lady.  I can't imagine the stress you are all ... Read more

Kris, DEvin, Kenzie & Megan signed Kacie's Guestbook.

Kacie, you are amazing, you are beautiful, I could go on and on, so not let stupid people get you. I know all of this is so hard for you to go through and understand why ... Read more

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